Does anyone suffer with hissing noise in head / ears . I have underactive thyroid and fibromyalgia/ possible Rheumatoid Arthritis?

[Dottie19]

Hissing head

[jencat]

Hi yes i do too, for many years now!

[Dottie19 in reply to jencat]

Isn’t it awful !

[Hidden]

Yep! Tinnitus is often caused by low ferritin/iron or B12 or magnesium.

[Dottie19 in reply to Hidden]

My ferritin is in abnormal high range , B12 fine - Not sure about magnesium

[jrbarnes]

I have all sorts of odd symptoms due to low thyroid. The random hissing and ringing in ears are a few.

[shaws Administrator]

I would suggest you ask GP to test both B12 and Vit D. Both very important. Some who have a very low B12 might have pernicious anaemia (another autoimmune condition).

TUK, had a consultant (died through an accident) who stated that people who had fibromyalgia recovered when prescribed T3.

drlowe.com/thyroidscience/c...

[Dottie19 in reply to shaws]

Thank you for your help 🙏

[Lorrena24]

Hi Dottie19, I am not sure if I had the same problem as yours but about 6 years ago I started having constant noice in my ears and couldn’t stay in quiet places because it was constant to the point that I couldn’t sleep. I mentioned it several times to different doctors no one could give me an answer or help. I had no choice but live with it, until one day I watched a video on YouTube where a doctor expletive that it was a muscular problem. I was sceptical but tried the exercise that he showed and OMG the noice went away! Mine was definitely caused ( that’s how I understand it ) by facial muscular tension. The exercises are very simple just stretching the low jaw down ( like when we yawn but with the mouth closed) and to the front. While doing it the noice will get worse but disappear straight after. I still get it sometimes but these help a lot. I also learned to relax my facial muscles before going to bed. I hope it will to you and others. Please ask your GP or physio about exercises if in any doubt.

[Dottie19 in reply to Lorrena24]

Thank you so much 😊

[Yeswithasmile]

Hi Dottie19

I was diagnosed with fibromyalgia and m.e when my first was born. He’s 25 now. I can say that levo helps but doesn’t get rid of it completely. I also have ringing in the ears which is high pitched and one incredibly itchy ear that I admit I can help but itch until I cause damage. I know that it’s stupid and I try not to but the relief when I do is fantastic 🙄. Itchy eyes too.

Lately I have been looking more at sjorens syndrome. I don’t know if anyone else has experience of this? It’s another auto immune condition that does seem to run alongside thyroid.

[Dottie19 in reply to Yeswithasmile]

You poor girl to cope have to cope 25 years with small baby . My ears do not itch but the hissing is like the sound of a pressure cooker !

Awful .

I was better on ERFA but now can’t get it .

Thank you for your reply . Will take a look 🌸

[Yeswithasmile]

Bless you! But you manage and he turned out ok 👍🏻 lol.

Interesting to note you were better on EFRA. Have you had your levels tested since switching? I can imagine it’s very frustrating to have such a shortage in supply with your usual medication. I haven’t tried it and am hoping a recent raise in levo means I don’t have to as it does seem loads of fellow sufferers have real problems obtaining either a prescription or the actual meds.

I think you just end up getting used to the noise to a certain amount. Not a reasonable thing to say. I know and I am sorry but the others comments may prove useful for you 🤞🏻🤞🏻🤞🏻

Hope you manage to feel better soon. x.