I was diagnosed with an overactive thyroid almost two years ago, prescribed Carbimazole, and have been for several blood tests, and most recently had a scan for a suspected goitre. I have had several appointments in the Endocrinology dept., but have only ever seen the nurse practitioner, but never the "main man". She has suggested that the best solution, as my T3 & T4 levels are still above "average", is surgery or (radioactive?) destruction of my thyroid. I have resisted, and related an issue my mum had 25 years ago, when she refused surgery, as, like me, she wasn't suffering with all the usual symptoms of an overactive thyroid. She was berated by her consultant, who told her she was a foolish woman, and that she would probably end up having a heart attack!
She asked for a second opinion, and was referred to a professor at the Manchester hospital. He was sent her notes / results, and she went to see him. Having talked to her, he said that surgery would have had a devastating effect on her, as some people need higher than normal levels of T3 & T4 to function normally. He also said that he was appalled that no-one had actually listened to what she was saying - not just relying on results on paper. My mum is still alive at 82 ( and very compus-mentis) and has even said to the endo's assistant that they can access her medical records, to confirm all this, but they won't. Unfortunately, the professor she saw has retired, so I can't go to see him, and though I'm seriously considering asking for a second opinion, I'm not sure whether I'll be jumping from the frying pan into the fire! (Hence the title of this post!) Having read / watched this group for quite a while now, I have never seen anyone who posts that they've had a successful outcome of anything! Does surgery ever solve anyone's problems? Does anyone in a hospital ever actually listen to a patient who, despite being reasonably intelligent (duhh, I do have an honours degree...) doesn't feel anything other than frustrated and annoyed after any appointment? Is going private an option? If so, is there anyone in North West England anyone could recommend? Would rather spend my kids' inheritance to get this sorted than carry on like this! Any advice would be gratefully accepted!