I have,an underactive Thyroid and,it does fluctuate and so my thyroxine meds are increased or decreased.
Im arranging for a blood test as i feel i have underactive symptoms ie cold tired and restricting feeling in my throat. I am experiencing strange phantom smells such as chemicals smoke and recently fish which i hate.
These smells wake me up and are potent. I know they dont really exist but this is new to me and wondered if its connected to my thyroid
Thanks
Jenni
GP shouldn’t be changing dose based just on TSH
Presumably you have Hashimoto’s (autoimmune thyroid disease) diagnosed by high thyroid antibodies
Do you always get same brand of levothyroxine?
What vitamin supplements are you currently taking
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies
Ask GP to test vitamin levels
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Is this how you do your tests?
Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins
List of private testing options
thyroiduk.org/getting-a-dia...
Medichecks Thyroid plus vitamins including folate (private blood draw required)
medichecks.com/products/thy...
Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test
Thriva also offer just vitamin testing
Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test
bluehorizonbloodtests.co.uk...
If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3
£29 (via NHS private service ) and 10% off if go on thyroid uk for code
There have been several previous posts about phantosmia - smelling things that don't exist.
I suggest it is worth reading through some of these older posts:
healthunlocked.com/thyroidu...
healthunlocked.com/thyroidu...
healthunlocked.com/thyroidu...
healthunlocked.com/thyroidu...
healthunlocked.com/thyroidu...
healthunlocked.com/thyroidu...
I’ve had this in the past and it disappeared as mysteriously as it came. I smelled petrol and smoke and I found it really unpleasant.
Woken by strong sweet cloying smell but no one else can smell it
Loss of sense of smell
phantom itchy nose and face
Getting the smell of petrol Everytime I breath
Lost sense of smell
