Phantom smells: I have,an underactive Thyroid and... - Thyroid UK

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Phantom smells

Jenni55 profile image
3 Replies

I have,an underactive Thyroid and,it does fluctuate and so my thyroxine meds are increased or decreased.

Im arranging for a blood test as i feel i have underactive symptoms ie cold tired and restricting feeling in my throat. I am experiencing strange phantom smells such as chemicals smoke and recently fish which i hate.

These smells wake me up and are potent. I know they dont really exist but this is new to me and wondered if its connected to my thyroid

Thanks

Jenni

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Jenni55 profile image
Jenni55
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3 Replies
SlowDragon profile image
SlowDragonAdministrator

GP shouldn’t be changing dose based just on TSH

Presumably you have Hashimoto’s (autoimmune thyroid disease) diagnosed by high thyroid antibodies

Do you always get same brand of levothyroxine?

What vitamin supplements are you currently taking

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus vitamins including folate (private blood draw required)

medichecks.com/products/thy...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

helvella profile image
helvellaAdministrator

There have been several previous posts about phantosmia - smelling things that don't exist.

I suggest it is worth reading through some of these older posts:

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu....

HighlandMo profile image
HighlandMo

I’ve had this in the past and it disappeared as mysteriously as it came. I smelled petrol and smoke and I found it really unpleasant.

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