Can anyone help with this please x

[Tallentire01]

LOW TSH normal T3 and T4? But massive symptoms

Hi. I am new and just looking for a little advice please.

I have had my thyroid levels check after noticing a lump, they done an ultrasound and said the lump is benign classified as a 2( dont know what that means) but I have all these weird symptoms.

I tremor especially in the morning.

Cant regulate body temperature at all.

Losing weight even though I am eating the normal amount.

My TSH was 0.10 and my T3 was 5.9 but they never told me the T4. I am being sent for a iodine uptake scan but the endo will not see me as he reckons there is no way these results can cause my symptoms.

I am at a bit of a loss really and am hoping the knowledge of you kind people can help me in some way.

Thank you for any replies. Xc

[SlowDragon Administrator]

Welcome to the Forum

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Hashimoto’s frequently starts with transient hyperthyroid results and symptoms, before becoming increasingly hypothyroid

Ask GP to test all four vitamin levels

Extremely important to test thyroid antibodies too

Can see on other post you say B12 is abnormal.....what’s the result and ranges

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus vitamins including folate (private blood draw required)

medichecks.com/products/thy...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

Genuine autoimmune hyperthyroidism is called Graves’ disease and confirmed by testing TSI or Trab antibodies

Graves Disease antibodies test

medichecks.com/products/tsh...

If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease).

About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s and Graves’ disease

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Link about Graves’ disease

thyroiduk.org/hyperthyroid-...

List of hypothyroid symptoms

thyroiduk.org/signs-symptom...

[Tallentire01 in reply to SlowDragon]

Hi thanks so much for your help.

My b12 was just below normal apparently.

My TSH has been low since 2017 but has fallen again. My DR thinks I am some sort of pest, but the reckons I shouldn't be having any symptoms of anything

X

[SlowDragon Administrator in reply to Tallentire01]

Well the range on B12 is far too wide...(typically 210-680) so if your B12 is below range it’s very very low

Many people have B12 deficiency symptoms if B12 is under 300

You are legally entitled to printed copies of your blood test results and ranges.

The best way to get access to current and historic blood test results is to register for online access to your medical record and blood test results

UK GP practices are supposed to offer everyone online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.

Link re access

healthunlocked.com/thyroidu...

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.

Important to see exactly what has been tested and equally important what hasn’t been tested yet

Rarely does GP test more than TSH, obviously that’s completely inadequate

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

B12 and folate work together, so very important to test folate too

If B12 is below range you need full testing for pernicious Anaemia before starting on B12 injections or as absolute minimum daily B12 supplements

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Come back with new post once you get actual results and ranges

[jimh111]

Sounds like hyperthyrodism. Do you know your resting pulse rate? I would ask for TSH, fT3, fT4 along with their reference intervals. It could be autoimmune thyroiditis so a TPO antibody assay would be useful. In autoimmune hypothyroidism it can start off as hyper and they go hypo as the thyroid fails.

[Tallentire01 in reply to jimh111]

Hi Jim

Thanks for the reply. I have had more information off you kind people than anyone.

As I said above it looks like TSH has been low since 2017 but no one mentioned anything.

But it has since gone down again.

What would a thyroid uptake scan show?

[jimh111 in reply to Tallentire01]

I'm not very up on scans but the thyroid can have 'hot spots' which secrete excess hormone and they will use up excess iodine. So they are looking for spontaenous thyroid activity. Can someone else confirm I'm correct on this please.