Sourcing Erfa Thyroid: I’ve just been prescribed... - Thyroid UK

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Sourcing Erfa Thyroid

Runnergirl profile image
9 Replies

I’ve just been prescribed a trial of Erfa Thyroid, could anyone direct message me where to get it from? Ive tried 2 chemists and realised its not easily available. Also how much is 1/2 a grain equivalent to in terms of T4/T3?

Many thanks in advance

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Runnergirl profile image
Runnergirl
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SeasideSusie profile image
SeasideSusieRemembering

Runnergirl

You have a prescription for Erfa? Then ThyroidUK has a list of pharmacies that will dispense here, you will need to ring round and compare price:

thyroiduk.org/help-support/...

Erfa tablet information:

30 mg tablet has 18 mcg of T4 and 4 mcg of T3 which is equivalent to 1/2 grain.

60 mg tablet has 35 mcg of T4 and 8 mcg of T3 which is quivalent to 1 grain.

Runnergirl profile image
Runnergirl in reply toSeasideSusie

Many thanks for your help

BrynGlas profile image
BrynGlas

SS, how does anyone get to be prescribed Erfa (NDT? Isn't it?) do I need a private endo? I am still trying to get to my GP to even discuss referring me to an Endo, it seems he will not budge, or answer my emails.

SeasideSusie profile image
SeasideSusieRemembering in reply toBrynGlas

Sorry BrynGlas I don't know. I believe it's very difficult to get it on the NHS as NDT is not licensed and it would have to be on a "named patient basis" but finding an NHS doctor willing to do that isn't easy.

thyroiduk.org/treatment-opt...

I don't how how easy it would be to find a private doctor to prescribe, that would need some research and asking for recommendations. Knowing where you live I think it will be like searching for hens' teeth but someone may know.

ThyroidUK has a list of doctors who have previously prescribed NDT so you could send for that if you're interested. Contact Dionne for the list of thyroid friendly endos and ask for both NHS and private:

tukadmin@thyroiduk.org

BrynGlas profile image
BrynGlas in reply toSeasideSusie

SS yes I have got the list and there are 2 doctors in Denbigh who have prescribed in the past but trying to get my GP to refer me is another thing, as well as the length of time it would take!

Runnergirl profile image
Runnergirl in reply toBrynGlas

Hi BrynGlas

Dr I saw is private and based in the midlands. Seems to be quite broadminded and said not everyone does well on Levo. My T4 was high end but T3 has been low on a few occasions which is why she suggested it.

BrynGlas profile image
BrynGlas in reply toRunnergirl

That's my problem at the moment too

HelenT3 profile image
HelenT3 in reply toBrynGlas

I had to see an endocrinologist privately to get a prescription for NDT it’s all sooo expensive🙄

Malina1 profile image
Malina1

I have just changed to Erfa . Mine is private script . Try Roseway Labs in London .

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