Suspected Pituitary Disfunction, any advice ple... - Thyroid UK

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Suspected Pituitary Disfunction, any advice please?

oceanescape profile image
6 Replies

Suspected Pituitary Disfunction, any recommendation?

Diagnosed with ME 7 years ago. Latest tests shows no immunity problems, TSH mid range, T3 T4 bottom 25 % range, low white cells count, inflammation and very low neutrophils count . I was on Nature 1 grain and felt amazing, these were recalled, tried ERFA and feel really bad. Ordering Armour tomorrow.

Symptoms are typical for hypo.

tiredness, brain fog, dry skin, dry hair, irritability, depression, itchy scalp, anxiety, muscle/bones pains, inability to lose weight, saggy skin

My diet is very good no gluten, no yeast, to wheat, no sugar, no caffeine, no alcohol, don't smoke. Try to exercise 3/ week when I have energy.

Endocrinologist suggested PITUITARY DYSFUNCTION. She suggested MRI scan of the pituitary gland.

I supplement :

D3,

B complex,

ferrous sulphate

Adrenal cortex

Citalopram 20 mg

I would really appreciate any advice, thanks in advance good people!

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SlowDragon profile image
SlowDragonAdministrator

Important to stop any supplements that contain biotin (eg vitamin B complex) a week before ALL BLOOD TESTS

Biotin can falsely affect test results

SlowDragon profile image
SlowDragonAdministrator

Do you have any recent results and ranges you can add?

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Bloods should be retested 6-8 weeks after constant unchanging dose

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

If/when also on T3, or NDT make sure to take last third or quarter of daily dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus vitamins including folate (private blood draw required)

medichecks.com/products/thy...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

Have you had ultrasound scan of thyroid

MRI of pituitary can be helpful

SarahJLD profile image
SarahJLD

Are you having blood tests for hormones and prolactin?

oceanescape profile image
oceanescape in reply to SarahJLD

I need to check whether I had a prolactin checked, some hormones were check. Can you advice which one are important and why prolactin please. ♥️

SarahJLD profile image
SarahJLD

Just know high prolactin indicates pituitary tumour.

Son has had repeated high prolactin and low testosterone and borderline/low T4. Consultant has requested GP follows it up with a macro prolactin as this will evidently give further information.

oceanescape profile image
oceanescape in reply to SarahJLD

Thank you so much ❤️

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