My doctor wont test my t3 were can i get in the uk a full thyroid test ??

[Cassie101]

Also they will not prescribe t3 and are saying nowere in the uk does?? X

[SeasideSusie Remembering]

Cassie101

Also they will not prescribe t3 and are saying nowere in the uk does??

Well he's wrong there. Many endos do as members of the forum will confirm. It's finding the right endo. T3 has to be initiated by an endo then eventually prescribing transferred to the GP. However, some CCGs are trying to stop prescriptions for T3, or have already stopped them.

ThyroidUK has recommended private labs who will do a variety of tests, you can get FT3 measured at many of them but it should always be done with TSH and FT4 as well.

Private testing information:

thyroiduk.org/getting-a-dia...

Most popular companies are Blue Horizon, Medichecks, some people use Thriva and Monitor My Health (they just offer basic TSH, FT4 and FT3 though). Blue Horizon and Medichecks probably offer the most test bundles. It depends on what you want tested.

[traceybarker in reply to SeasideSusie]

Endocrinology do I've had them x

[SlowDragon Administrator]

Previous posts show you have Hashimoto’s and were in need of dose increase in levothyroxine

healthunlocked.com/thyroidu...

Ft4 was only 25% through range

Helpful calculator for working out percentage through range

chorobytarczycy.eu/kalkulator

Ferritin dire

Vitamin D ok

B12 and folate probably needing improvement

Did you get levothyroxine dose increase from GP

What’s happening about extremely low ferritin

[Cassie101 in reply to SlowDragon]

My go gave me ferrous folate and folic acid for iron... she also gave my b12 x

[SlowDragon Administrator]

At this stage you don’t need to look at adding T3

You need to get ferritin levels improved and dose increase in levothyroxine

Retesting FULL thyroid after 6-8 weeks on increased levothyroxine

Meanwhile email Dionne at Thyroid UK for list of recommend thyroid specialist endocrinologists who will prescribe T3, if you eventually need it

If in England which CCG area are you in? Some are worse than others over agreeing funding for T3

[Cassie101 in reply to SlowDragon]

If increased levothyroxine to 25mg Every night instead of every other night c how i go because of side effects x

[Cassie101 in reply to Cassie101]

How do I message her ?? X

[SeasideSusie Remembering in reply to Cassie101]

Who do you want to message?

[humanbean in reply to Cassie101]

To get the list of thyroid practitioners email Dionne at [e-mail]

[humanbean in reply to humanbean]

Be aware that the list contains the names of doctors who have been helpful to patients in the past.

Just because it happened once doesn't mean that people can always expect the same treatment. Doctors have good days and bad days, rules and guidelines change...

So, the list is useful but isn't guaranteed to make everything better, thyroid-wise.

[Cassie101 in reply to humanbean]

Thank you so much I understand x

[Babette]

Your GP's not strictly correct about nobody being prescribed T3. I'm lucky enough to get T3 on the NHS (for the moment) and have done for a few years but it's certainly more difficult now. It did have to be initiated by an endocrinologist and I need to be monitored by the hospital at least once a year. Whilst the endocrinologists are able to initiate T3 as a treatment, I understand that they have to make a strong case for doing so. Not responding well to T4 is not a valid case, apparently.

If I have my bloods done locally, even if my GP requests it, the lab won't test it. If I have them done at the clinic closer to work, the bloods go to a different hospital and they will test. Crazy.

[Cassie101 in reply to Babette]

It defo is crazy.. I have been neglected but the doctors and endo they won't even test my hole thyroid and I have to argued with them to get any other tests done its terrible x