Alopecia

[FLAMB]

Hi

Does anyone have any advice or tips on under active thyroid and alopecia? I take levothyroxine but my alopecia is still slowly getting worse.

[SeasideSusie Remembering]

FLAMB

Have you checked vitamins and minerals, deficiencies can lead to hair loss:

hubpages.com/health/16-Vita...

[FLAMB in reply to SeasideSusie]

Can you recommend a home vitamin deficiency test?

[SeasideSusie Remembering in reply to FLAMB]

FLAMB

Not that includes all those I'm afraid. Some can be done by Medichecks or Blue Horizon but those would be the core vitamins Vit D, B12, Folate, Ferritin and best value is when they're included in a thyroid/vitamin test bundle.

[LiliBili]

The way I understand it, your antibodies are attacking your hair follicles.

Therefore, it’s important to support your immune system to get it behaving itself.

Ways to do that include- manage your vit, mineral and healthy food intake, cut stress out as much as poss, sleep plenty, exercise moderately.

Suggest you also look at foods to cut inflammation.

Also, are you on dairy and gluten free? Plus cut sugar. That will all help I’m sure. Good luck.

[FLAMB in reply to LiliBili]

Thanks for this reply. Would Gluten and Diary make a difference? I don’t think I have intolerances to them. I don’t show signs for it.

I’ll look at foods that cause inflammation, I had no idea there was such a thing.

[NWA6 in reply to LiliBili]

Antibodies don’t attack anything. They clean up 🤗

[Lora7again]

Have you actually been diagnosed with alopecia? Thyroid hair loss is losing hair all over your head or chronic telogen effluvium. I have experienced this twice and both times it lasted a couple of years. I thought I would go bald but I didn't even though my hairline receded. Until the trigger is removed or your thyroid levels are stablized this will continue I'm afraid. Having low ferritin and low vitamin D can also cause this. On a positive note my hair has now been growing back for over a year now. Before I was losing hundreds a day and now I lose about 3 hairs a day. My GP never took my hair loss seriously and I have had to do my own research about it. I paid to see a dermatologist £150 over 10 years ago and she said I had female pattern balding. I would love to go back and get my money back because mine was caused by my thyroid disease and she was completely wrong. She even told me to buy rogaine which I never used because I discovered what was causing my hair loss by joining Elaine Moore's site in the US.

[FLAMB in reply to Lora7again]

I am losing my hair on my hairline and crown. Worse on my hairline.

What was triggering your hair loss? Thyroid or vitamin deficiency?

What/who is Elaine Moore?

[Lora7again in reply to FLAMB]

Mainly thyroid disease triggered my hair loss but having low ferritin and low vitamin D didn't help. Elaine Moore is a site for people who have Graves' disease or hyperthyroid. Yours does sound a lot like my hair loss. For some reason the hair goes into a short cycle of continuous shedding. Once you find your trigger it will stop.

[FLAMB]

Do you work for them?

[helvella Administrator Thyroid UK in reply to FLAMB]

If you suspect spam - or other abuse - please click on "Report" in blue at the bottom of the post. That way all the admins get advised and HU also get informed.

[Lora7again in reply to helvella]

Has a post been removed because I thought they were posting to me.

[helvella Administrator Thyroid UK in reply to Lora7again]

Yes - it has.

[Lora7again in reply to FLAMB]

I work for myself and I don't get paid for passing on information that helped me during my struggle of 12 years suffering with this disease. A lot of us are members of her site because it is full of useful information from someone who has Graves' disease and then had RAI and regretted it.

[helvella Administrator Thyroid UK in reply to Lora7again]

There was a reply on this thread from another member which had many of the hallmarks of spam.

It has now been deleted.

I inferred that FLAMB meant to respond to that reply but inadvertently replied to the original post. This put that response in a position where it could appear to apply to another response.

Also, this is what NWA6 referred to in another reply on this thread.

We welcome helpful information about anything which has helped. We remove spam as soon as we are clear that is what it is.

[Lora7again in reply to helvella]

I realise that now ... I thought they meant I was working for Elaine which is impossible as we both live in different countries and I am not as knowledgeable as she is. 😀

[NWA6]

You haven’t written or replied to any posts on this forum before. It would be very uncool to pray on the misfortunes and vulnerabilities of others. I hope I’m wrong but this is not the site for you to sell products!

helvella and other admins can you keep an eye?