At long last my test results are here despite t... - Thyroid UK

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At long last my test results are here despite the Covid delays

21 Replies

Hi all it’s been quite some time since I posted as I’ve been mainly on the p.a forum which has been a great help to me so thank you for pointing me in that direction.

I’ve finally managed to get my bloods tested after supplementing as advised here,so today I had some results back and turns out I have Addison’s disease.my new gp has been first class and has referred me to the private endo of my choice a lovely professor based in oxford who came highly recommended thank you.Appointment is in two weeks.

My results have changed since I first posted here so I’d appreciate your wisdom once again please.

TSH 1.48 range 0.27-4.2 miul

FreeT3 4.63 pmol range 3.1-6.8

Free Thyroxine 14.6 pmol range 12.-22

My folate is still low but I’m guessing that’s because I’ve been having b12 injections so I’ll increase my supplements on that.

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21 Replies
Marz profile image
Marz

Hope your appointment brings you better health soon ... 🌻

in reply toMarz

Hi Marz thanks so much for that,slow but sure I’m making progress x

magsyh profile image
magsyh

Looks like you need a raise of thyroid meds as levels are still too low but you need to address your Addison's first as raising your medication would put more stress on your adrenals. Hope you get this fixed soon and feel better with hydrocortisone.

in reply tomagsyh

Thanks so much magsyh that’s what I wanted to hear ,this endo I’m going to has expertise in this thyroid area too.x

fuchsia-pink profile image
fuchsia-pink

Assume you had an early morning blood draw, an left 24 hours from previous levo.

In terms of statistics, your TSH is a little higher than many of us hypos like. Your free T4 is only 26% through range. Your free T3 is slightly better at 41.35% though range which means you convert well - but many of us need both of these to be at least top third of range, often top quartile - so there's plenty of scope for a dose increase if you don't feel tip-top x

in reply tofuchsia-pink

Hi I’m not on any thyroid medication.I took the advice here and optimised my vitamin levels then I got retested to see what if any changes I had so that’s why I posted the latest results. X

fuchsia-pink profile image
fuchsia-pink in reply to

Aaah. Then they probably won't treat you as your TSH isn't out of range yet, and most doctors want it waaaay out of range before they'll give you levo :(

So you'll need to get regular checks of your TSH and see if your doc will treat you once you go out-of-range,

But good luck!

in reply tofuchsia-pink

Thank you for the advice it’s always appreciated.take care x

magsyh profile image
magsyh in reply to

I wasn't aware you were not taking thyroid medication in that case wait till you start on hydrocortisone you may well see a good improvement in your thyroid.

in reply tomagsyh

Thank you magsyh I’m happy to be guided by this new endo he comes highly recommended be nice to have someone who can join the dots.x

Jamima profile image
Jamima in reply to

I’m watching your progress with great interest as I have similar readings to yours and I’ve been recommended the same endo. I have found another endo near me who I’m speaking to tonight but if I get no joy, I’ll contact your man. Good luck.

in reply toJamima

Hi a Jamima I went to another endo but sadly it was just money after money and also involved buying big amounts of support supplements which I wasn’t comfortable with taking when we didn’t have the full test reports and investigations done so I decided to part with him.

This endo comes highly recommended by members and I’ve did my homework researching so fingers crossed is all I can say,I got my appointment super quick and I’ve had a lot of updated tests done myself so I’ll update after I’ve spoken to him.x

Jamima profile image
Jamima in reply to

Please do. I will too.

SPD1 profile image
SPD1

Hi,

do you mind me asking how far away from where you live your Endo is? i wasnt aware you could ask your GP to refer to someone in particular, does it just apply to someone within a persons County or could it be anywhere in the UK?

many thanks.

Lora7again profile image
Lora7again in reply toSPD1

Mine is 15 minutes away but I wouldn't touch him with a barge pole. I used to work for the NHS and with a referral letter you can go anywhere within the NHS to see the Endocrinologist of your choice. If you find one you want to see I would ring his secretary and ask if he will see you and then ask for a referral letter from your GP.

SPD1 profile image
SPD1 in reply toLora7again

That's really good to know, thanks very much indeed.

in reply toSPD1

Hi there it’s a private endo referral which you can do anywhere in the country if your gp is amenable.

I think you can also ask your gp to refer if you have an nhs endo in mind and your willing to travel but I’m not 100% on that I’m sure someone here can give better advice sorry.x

SPD1 profile image
SPD1 in reply to

Many thanks.

in reply toSPD1

Can pm his details and costs if it’s any help to you x

SPD1 profile image
SPD1 in reply to

Please, any suggestions very welcome. thanks.

in reply toSPD1

Pm sent to you good luck x

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