CBD OIL ADVICE PLEASE. Reputable Company if an... - Thyroid UK

Thyroid UK

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CBD OIL ADVICE PLEASE. Reputable Company if anyone could advise....

Thyb profile image

Hi

I am going to purchase CBD Oil as I can't take strong pain meds GP has prescribed recently/and in past...e.g. Pregabalun, Morphine, tramadol, nefopam hydrochloride.

After googling FULL SPECTRUM CBD Oil I found 2 UK sites:- Provocan and Hempoil. I would so appreciate hearing from anyone who has taken CBD Oil and in particular who you purchased it from please.

My pain is 'Osteoporosis/spine fracture related, cervical spondalosis, lumbar probs degenerative disc problems(lost fluid between discs) etc etc and more recently headaches which I never usually have.

Sorry, gone off on a tangent just would like advice on which CBD Oil is best with as little THC as poss.

I notice it is almost £40 for 600mg and £70 for 1200mg so want to try and make right choice as obviously quite expensive. Although, if it works 'it's only money'...

Thanks in advance :-)

64 Replies
RedApple profile image
RedAppleAdministrator

Thyb, I doubt anyone here is qualified to advise which oil or supplier is best, but this supplier has been mentioned many times by members. simply-cbd.co.uk They have a Facebook support group, so if you have an FB account you could join the group to ask questions and read other opinions before parting with any money.

Thyb profile image
Thyb in reply to RedApple

Thank you but when I click on link it comes up 'your connection is at risk, back to safety?

helvella profile image
helvellaAdministrator in reply to Thyb

What I see is that parts of the page may not be secure.

This is, unfortunately, quite common. There are various reasons for sites being like this - though, obviously, it is better if absolutely everything is secure (i.e. using https).

Thyb profile image
Thyb in reply to helvella

All I do know for certain is I didn't feel ill BEFORE starting levothyroxine 8 1/2 years ago. I'm beginning to think taking levothyroxine is a 'poison to my system' and that once taking it thyroid cannot produce antibodies itself. Yes brain fog/confused BUT at times after approx 2 weeks abstaining from it felt better in myself. Also, I was diagnosed within 6 Months of Periods ceasing. Makes me wonder now whether hypo symptoms 'showed up merely because menopause' after checking medical record thyroid was normal a year before diagnosis. Also, now have ridiculous high TPO only knew this Month from Blue Horizon????

Hypopotamus profile image
Hypopotamus in reply to Thyb

Thyroxine also makes me ill.

I've been using Simply for around a year now, and there is no risk. They are a very good company to deal with. The issue is with knowing which of their products to buy, and a big factor is price. I'm still using the 'Green' but if I had more funds, I would try one of the others.

Thyb profile image
Thyb in reply to Hypopotamus

Where do you purchase 'Simply from' could you tell me ingredients in it please :-) are you in UK

Hypopotamus profile image
Hypopotamus in reply to Thyb

Simply CBD is a UK supplier. I don't think that we are allowed to put links here but it comes up in a Google search. Actually I have just noticed that RedApple put the link in their post. As far as I know their products contain CDB oil, and they do publish the certificates of quality on the site.

Thyb profile image
Thyb in reply to Hypopotamus

Hi Hypopotamus, I just realised you meant 'Simply Green CBD Oil'. Which brand of thyroxine do you take?

Hypopotamus profile image
Hypopotamus in reply to Thyb

I don't. I went over to NDT 13 years ago. (Currently looking for a new one as the one that I take is no longer produced).

Thyb profile image
Thyb in reply to Hypopotamus

Is NDT Available in UK...I don't think it is :-(

in reply to Thyb

I am intolerant of Levothyroxine and proved the point to my Endo by stopping it for 4 days. Even though I have no thyroid, I felt better without it.

He agreed that a few people can’t tolerate it.

Thyb profile image
Thyb in reply to

Hi Scrumbler, what do you take instead of levothyroxine?

in reply to Thyb

NDT. Very pleased with it.

RedApple profile image
RedAppleAdministrator in reply to Thyb

Using Safari on Mac, I have no warnings or issues when clicking the link. They've been trading for a few years now , so I think if there was anything to worry about we'd have heard about it here. Here's a link to their 'Contact' page simply-cbd.co.uk/contact/, which starts with https: I think this denotes it is a secure site.

I don't get that. Try going straight to the shop URL: simply-cbd.co.uk/shop/ And remember that https only protects data you enter, not data you read, so until you actually login or order something, it's really irrelevant to your safety.

Yellow2651 profile image
Yellow2651 in reply to RedApple

I have used a company in Spain called Another CBD company and I recommend them I have arthritus in my hands and it was so painful and inflamed but since taking this in a glass of water every day I have no pain andthe inflammation has gone. Look on their website.

RedApple profile image
RedAppleAdministrator in reply to Yellow2651

There are excellent suppliers in the UK, so it makes sense to me to support UK based businesses if you're in the UK.

Yellow2651 profile image
Yellow2651 in reply to RedApple

Well I have been using this company for a while now and i have used their products and i'm very happy with them the service is great so I don't see a reason to change !

Thyb profile image
Thyb in reply to Yellow2651

Thank you but I have already ordered Provocan from London :-)

Are you taking alendronic acid or anything for your osteoporosis? I’ll be interested to hear how CBD oil will get along with that. I was prescribed pregabalin for CRPS that I ended up with after a wrist fracture- wrist is better but hand is pretty trashed for some reason. The pregabalin helped my hand pain but the rest of me felt so bad I phased it out, unfortunately the hand has gone back to its pre-pregabalin state.

I thought about CBD oil but worried about how it would react with the alendronic and other meds I take for RA and blood pressure. I know exactly what you mean when you say ‘if it works, it’s only money’

Thyb profile image
Thyb in reply to Fruitandnutcase

I won't take Alendronic Acid because 1st time i tried it nearly 3 years ago my hand/arm really swelled up!! They want me on prolia injection but with thyroid meds very likely to interact causing osteocronosis of jaw, femur fractures etc....so I'll try CBD Oil when it arrives and let you know. I've had 3 spine fractures in 2 1/2 years due to osteoporosis in spine :-(

wellness1 profile image
wellness1 in reply to Thyb

Sorry you're in so much pain, Thyb. I hope you find something helpful. I've never heard of thyroid meds interacting with Prolia or other osteoporosis drugs resulting in increased fracture rates or osteonecrosis of the jaw. May I ask where you read/heard this? Thanks and good luck.

Thyb profile image
Thyb in reply to wellness1

I read on ncbhi website and another but can't remember name of 2nd one. I read it's high risk for levo and diazapam though

Fruitandnutcase profile image
Fruitandnutcase in reply to Thyb

Think very carefully about starting Prolia. Once you start you can’t stop without taking something else. Have a look on the Bones section of Healthunlocked and read all about it.

So far I’ve been ok with the alendronic acid but I’d rather not be taking it. I debated about it for a long time until I showed my Pilates teacher who is also a physiotherapist my DEXA results and she said with readings like mine she would definitely take it. I really respect her advice, then I discovered in conversation that a lot of people I know have been taking it for years. The ONJ does bother me though. Especially with dental services as they are at the moment. I’ll be very interested to hear how the CBD oil goes.

Thyb profile image
Thyb in reply to Fruitandnutcase

Thank you for advice. I have been offered Zolendronic Acid IV but sounds as bad as Prolia. Have you taken Alendronic Acid for long and have you had any side effects? It maybe the excipients in it that I was allergic to but no idea who the Manufacturer was as they gave me it in Hospital October 2017, and as I was on Morphine at the time I wouldn't have thought about checking it

Fruitandnutcase profile image
Fruitandnutcase in reply to Thyb

I’ve only been taking it for three months. I take my 70mcg tablet on a Sunday morning, I put my coat on, then take it with a big glass of tap water, husband sets his phone timer and we go off and walk for half an hour. It was lovely when we had all that sunshine but it was cold on Sunday so I might have to either revise that plan in winter or toughen up.

I’m not sure who makes this - I’ve had two different manufacturers so far - no difference in them that I can tell. I know what you mean about excipients though, I get a named blood pressure tablet for that reason. I was lucky that I had the patient information leaflet for the generic that I was given and after comparing all the ingredients it came down to two fillers that were different and obviously one or both of them caused the problem for me.

I don’t think I’ve had any side effects from the alendronic so far - no reflux - yet! I don’t know if I’d get that right away or if it can build up in years ur system over time.

I used to feel tired the day I took it and I used to think I felt my bones ache a bit the day after, especially the wrist that I broke but that could be my imagination.

It’s just that I was very active before this, I did all the right load bearing exercise, lots of walking, did Pilates for about 20 years I ate all the right things etc, I wasn’t sure if I didn’t take the alendronic I could do more, it’s just the idea of it I don’t like.

That’s partly why I gave up on the pregabalin, it seems to be a very powerful drug, My alendronic acid is a ‘big’ drug, as is the hydroxychloroquine I take for inflammatory arthritis and I just felt I didn’t have to take the pregabalin, I got it because the doctor thought it might help with what we think is CRPS and it did help - a lot - but it also made me feel really dreadful so why keep taking it?

in reply to Thyb

All the Bisphosphonates have the same effect on me: gastric symptoms, flu like symptoms, muscle pain. These are documented side effects.

Thyb profile image
Thyb in reply to

Do you take any bisphosphonates? If yes which one Scrumbler

in reply to Thyb

I don’t. They all have the same effect as the underlying pharmacology is the same. I rely on the dubious efficacy of prescribed Calcium with Vitamin D. I add in my own Magnesium in a 1:1 ratio with Calcium and take Vitamin K2

I did really well on Protos (Strontium Ranelate) which works in a completely different way with no side effects to speak of. Sadly it was withdrawn because of ‘potential for unexpected cardiac events’. I understand that it is now being used again where there are no cardiac issues and where Bisphosphonates are not tolerated - if a fracture has been sustained 🙄. I’m thinking of asking my doctor about having this again. I’d prefer not to have to arrange for a broken leg in order to have it prescribed.

Thyb profile image
Thyb in reply to

Which K2 brand do you use. I need to purchase some. At the mo i have vegavero K2+D3 spray but it contains only 20ug Vit D3 and 75ug K2....Think I need more D3

Thyb profile image
Thyb in reply to

Sorry I didn't reply earlier...I've spent hours researching CBD Oils. I've decided Blessed CBD Oil gets my vote 5* plus they show everything you could possibly want to know on their site. Provocan don't, but Provocan was recommended to me by a friend.....

in reply to Thyb

If you don’t cope well with side effects of one, you won’t cope with any.

One doctor I saw had the bright idea of giving me the ‘monthly’ dose of Ibandronic Acid (marketed as Bonviva). His reasoning was that I would only have to go through the S/e once a month. What he didn’t consider was the massive dose involved. I have never felt so ill in my life. I spent two weeks in bed and it was the only occasion that I had a GP home visit. GP was appalled and said that it’s only usually used in a hospital setting.

It may pay you to read about how Bisphosphonates work. Osteoblasts, bone necrosis (especially jaw) are major issues. They are not often being prescribed now to the newly diagnosed. These issues, combined with side effects, are indicating that they are not a drug of choice.

Thyb profile image
Thyb in reply to

I know about the jaw and femur issues and the rest that's why I won't take their Prolia, Zolendronic acid and the rest!! Don't need more 'poisons' in my system

in reply to Thyb

Exactly

Thyb profile image
Thyb in reply to Fruitandnutcase

I have tried Pregabalin, tramadol, morphine, nefopam hydrochloride but take none of them now due to their side effects

Fruitandnutcase profile image
Fruitandnutcase in reply to Thyb

I hated the effect of pregabalin, it was horrible , I felt that it was turning me from an active 70 year old into one of those poor little frail old ladies you see clinging onto their carer’s arm. Fortunately I’m back to normal again.

Yellow2651 profile image
Yellow2651 in reply to Thyb

Yes stay away from Pregabalin and Tramadol as side effects are terrible and also coming off them isn't pleasant.

Thyb profile image
Thyb in reply to Yellow2651

I only took either for 5 days max as didn't like side effects or constipation. Spaced out on pregabalin but calm and agitated on Tramadol yuk

Thyb profile image
Thyb in reply to Yellow2651

I have ordered Provacan CBD Oil so just hope it's a better pain reliever without side effects. I'LL Let you know when it arrives and after taking 'a drop'

in reply to Thyb

Keep us posted about the CBD oil. I tried one once. No effect and it was expensive. Perhaps I chose the wrong one.

Thyb profile image
Thyb in reply to

Hi Scrumbler

I have tried the 'Natural Blessed CBD Premium Oil Full Spectrum...500mg for starters'..Too early to tell but I haven't needed any painkillers and only a 5th daily amount of diazapam I would normally take' !!!! I'll let you know in a few days how it goes :-)

P.S. I also have the Provacan Full Spectrum CBD Oil but it's 1200mg so I'll save it for a later date. Blessed send it free delivery next day guaranteed if ordered before 1400hrs

Prices:-

Blessed 500mg £44.95

Provacan 1200mg £69.95

in reply to Yellow2651

Ditto Gabapentin

Thyb profile image
Thyb in reply to

What do you take for pain Scrumbler

in reply to Thyb

Gabapentin 🙁. I have autoimmune disease and peripheral neuropathy. Gabapentin, like Pregablin, is used for this. I take the lowest dose possible. It’s minimally effective but better than nothing. Neuro keeps trying to increase dose but I won’t have it. It took me ages to titrate up to the dose I have. It causes drowsiness and other symptoms. I maintain the dose I’m on now without these symptoms, but any more and I’d be in Zombie Land.

Thyb profile image
Thyb in reply to

That's the reason I'm going to try CBD Oil for pain as pregabalin, tramadol, morphine, nefopam all too many side effects. BUT, yesterday I ordered Adrenal kit from rhegen (can't remember how to spell it) as per advise on this site to check cortisol levels, adrenals etc before taking it. I didn't know CBD could cause low cortisol levels....Always something else :-) :-;

in reply to Thyb

I didn’t either 😳.

Thyb profile image
Thyb in reply to

Exactly arrrrrgh :'(;-) ;-)

Thyb profile image
Thyb in reply to

I notice via research that too much levothyroxine can cause osteoporosis which I have in spine. I do wonder if I'd have developed osteoporosis if I'd never started levo 8 1/2 years ago! I understand it's more likely to develop in hyperthyroid people.....But my side effects to all levo have been symptoms of hyper...e.g. some weight loss, anxiety, irritable, insomnia, fatigue chronic, sometimes too hot/more hot than cold with exception of my feet which are always very cold so always wear socks. I put on profile 'wish I'd never started levo' because I sure felt better before

in reply to Thyb

Sorry to burst your bubble Thybo but I had osteoporosis long before I had my thyroid removed and became reliant on hormones.

There is a view - to which I don’t subscribe - that suppressed TSH causes osteoporosis.

The only connection which I’m prepared to entertain is that of oestrogen dominance (low progesterone)

I have always bought from Provacan for top quality. Be aware that CBD lowers cortisol levels so not good for those with adrenal insufficiency.

Thyb profile image
Thyb in reply to magsyh

I don't know about adrenal insufficiency. All I know is that my Cortisol level was 525 nmol/l on 13.05.20 - blood taken at 9:35am and sent to Blue Horizon Medicals. I am a newby only joined about a Month ago :-) Glad I did as I find GP's/Endo either have no knowledge or their incompetant

magsyh profile image
magsyh in reply to Thyb

I think that is high? Only know about saliva levels of you want an accurate test. Was blood taken 30 mins after waking up?

Thyb profile image
Thyb in reply to magsyh

Can't remember but probably at least an hour after waking as i knew i had to prick my finger and draw blood....was panicking as never done that before :-) lol

magsyh profile image
magsyh in reply to Thyb

I would suggest you get an all day cortisol test done from saliva for an accurate result on your cortisol along with dhea.

Thyb profile image
Thyb in reply to magsyh

What is dhea and do Blue Horizons do both tests?

SeasideSusie profile image
SeasideSusieAdministrator in reply to Thyb

Thyb

You need DHEA testing with cortisol as it helps determining stages of adrenal fatigue.

Neither Blue Horizon nor Medichecks offer this test. Both Regenerus and Genova Diagnostics offer the combined cortisol plus DHEA test.

Regenerus : Adrenal Function Saliva Test - Order Code HOR05

thyroiduk.org/getting-a-dia...

Genova Diagnostics : Adrenal Stress Profile (ASI): Cortisol/DHEA - Order Code END01

thyroiduk.org/getting-a-dia...

I use Regenerus as they contact you direct when the results are available, Genova send them to ThyroidUK who then send them to you when they have received your consent form.

Thyb profile image
Thyb in reply to SeasideSusie

Thank you SeasideSusie. I ordered HOR05 From Regenerus. Did you say they send results via email same as Blue Horizon. Does this Adrenal function saliva include DHEA test. I sure have a lot to learn :-)

magsyh profile image
magsyh in reply to Thyb

I have also ordered this test, will be doing it tomorrow. I wouldn't use the CBD until you get your test results back. I have low cortisol so I find CBD makes my pulse race.

Thyb profile image
Thyb in reply to magsyh

I will hold off until I have tests don't want pulse racing as Tirosint did that to me and really scared me...

Thyb profile image
Thyb in reply to magsyh

Does HOR05 INCLUDE DHEA as well as Adrenal Function saliva

SeasideSusie profile image
SeasideSusieAdministrator in reply to Thyb

Thyb

Yes, as I said above, both Regenerus and Genova offer the combined cortisol/DHEA test.

Regenerus email you when your results are available, you log into your account and can see them, also you can print them off.

in reply to Thyb

Or both

Thyb profile image
Thyb in reply to magsyh

I bought the 1200mg bottle£69.99....just hope it comes with instructions. I'm 'guessing' starting dose would be one drop......

I also have spine problems so am trying Vitality berry flavour cbd oil. Have also purchased some gummies cbd so can adjust strength. Has made a big difference for me and can now cope. I take 70ml a day along with zapain. Took a long time to make notes and read reports it came to one I could repeat order and of course no thc.Believe me worth a try as now have slept.

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