Never ending worrying symptoms: Hi everyone I'd... - Thyroid UK

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Never ending worrying symptoms

Evane7 profile image
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Hi everyone

I'd love your opinions. I have had many weird symptoms over last 2 years-tingling, aches and pains, migraines, nausea, stomach pain, hip pain, urinary urgency, restless legs and cramps ect. Have had MRI and scans ect and all fine.

Now my bloods are saying that Iron is high but ferratin normal (don't have figures) so have been referred for Hemochromatosis test even though doc doesn't think this is case as liver function normal.

B12 is consistently high and am not supplementing. Vitamin d on low side even though I supplement.

Thyroid shows TSH 1.38 (RANGE 0.27-4.2)

FT4 13.60 (RANGE 12-22)

Could it be something driven by thyroid? Am going to go to Hematologist too for more investigations as am so tired of feeling this way. Many thanks.

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Evane7
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SlowDragon profile image
SlowDragonAdministrator

So you need to get FULL thyroid and vitamin testing

As suggested in previous post a year ago

healthunlocked.com/thyroidu...

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

A year ago you posted low folate result

How low was vitamin D

How much do you supplement

What’s your diet like

You may need to get full Thyroid testing privately as NHS refuses to test TG antibodies if TPO antibodies are negative

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus ultra vitamin

medichecks.com/products/thy...

Medichecks often have special offers, if order on Thursdays

Thriva Thyroid plus vitamins

thriva.co/tests/thyroid-test

Blue Horizon Thyroid Premium Gold includes vitamins

bluehorizonbloodtests.co.uk...

If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease).

About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s. Gluten intolerance is often a hidden issue to.

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

List of hypothyroid symptoms

thyroiduk.org/signs-symptom...

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