Hashimoto's : Hello Everyone 😊 I was wondering... - Thyroid UK

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Hashimoto's

Kisca profile image
9 Replies

Hello Everyone 😊

I was wondering if you could shine a light on these results please?

I was having peri menopause symptoms which is why initially I wanted my hormone levels checked... Hence the estrogen and progesterone results on photo. Thankfully the hormone doctor also did a full thyroid panel and these were the results!

I have now gone gluten free and taking vitamin d spray.

Is there anything else you can see that would help?

Thank you so much for your help xx

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Kisca
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SlowDragon profile image
SlowDragonAdministrator

We always need the ranges on TSH, Ft4 and Ft3

Have you been started on levothyroxine?

Yes ...High antibodies confirms autoimmune thyroid disease also called hashimoto’s

Low vitamin D extremely common with Hashimoto’s

Active B12 is low (anything under 70 is considered suspicious)

No folate or ferritin results?

Kisca profile image
Kisca in reply toSlowDragon

Thank you so much for your message 👍

The doctor said to go gluten free and take vitamin d supplements... I've been kinda left in limbo really 😕😕

She said see how I go going gluten free... She said nothing about B12 supplements... 🙄

No folate or Ferritin were tested.

SlowDragon profile image
SlowDragonAdministrator in reply toKisca

Ok so TSH slightly raised ..but within range

Ft4 right at bottom of range

Ft3 mid range

Going strictly gluten free is always one of first steps with Hashimoto’s

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

Assuming test is negative you can immediately go on strictly gluten free diet

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

ncbi.nlm.nih.gov/pubmed/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

ncbi.nlm.nih.gov/pubmed/300...

The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

drknews.com/changing-your-d...

Improving vitamin levels essential

Vitamin D

GP will often only prescribe to bring levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

NHS Guidelines on dose vitamin D required

ouh.nhs.uk/osteoporosis/use...

But improving to around 80nmol or 100nmol by self supplementing may be better

ncbi.nlm.nih.gov/pubmed/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function. There’s a version made that also contains vitamin K2 Mk7

It’s trial and error what dose we need, with hashimoto’s we frequently need higher dose than average

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

Also read up on importance of magnesium and vitamin K2 Mk7 supplements when taking vitamins

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

B12 on the low side. Supplementing a good quality daily vitamin B complex, one with folate in not folic acid may be beneficial.

chriskresser.com/folate-vs-...

B vitamins best taken in the morning after breakfast

Igennus Super B complex are nice small tablets. Often only need one tablet per day, not two. Certainly only start with one tablet per day after breakfast. Retesting levels in 6-8 weeks

Or Thorne Basic B or jarrow B-right are other options that contain folate, but both are large capsules

If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before any blood tests, as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

Low B12 symptoms

b12deficiency.info/signs-an...

Low vitamin D and low B vitamins may be linked as explained here

drgominak.com/sleep/vitamin...

In YouTube video when Dr Gominak talks about vitamin D levels ...vitamin D at 40ng/ml (USA units) is equal to 100nmol (UK units)

youtu.be/74F22bjBmqE

Only add one supplement at a time and wait at least two weeks to assess before starting another

greygoose profile image
greygoose

Sorry, but we can't see the ranges, there. And, we really do need the ranges because they vary from lab to lab. :)

Kisca profile image
Kisca in reply togreygoose

Hello 👋

I've uploaded another picture... I hope this is OK 👍 👍

greygoose profile image
greygoose in reply toKisca

That's better. :)

Well, your B12 is much too low. Although, as it's in-range, your doctor will think it's 'fine'. Doctors don't learn about nutrients in med school, so they're not really equipped to read the results. Low B12 can cause hypo-like symptoms, so you really do need to do something about that.

Your TSH is still in-range, but technically, you're hypo when your TSH gets to 3.

Your FT4 is right on the bottom line, but, as it's still 'in-range', your doctor won't take any notice of that, either.

Your FT3 is a bit better, but still too low.

Basically, your doctor doesn't know enough about thyroid to realise how bad your results are, and probably won't want to diagnose until your TSH goes at least over-range - if not right up to 10. But add an over-range TSH, plus high antibodies, plus an FT4 under-range, and then she should sit up and take notice. And, as you have Hashi's, it probably won't be too long before you reach that point.

Do you know how Hashi's works?

Eliotf profile image
Eliotf in reply togreygoose

With GreyGoose’s response: find a thyroid expert! Plus if your tsh & t4 are close to normal, yet your t3 is low: your body may not be converting the t4 to t3. That plus hashimotos

greygoose profile image
greygoose in reply toEliotf

Hashi's people are often poor converters. But, if you look at her results, you'll see that that is not the problem here, at this moment. It might come later, but at the moment her FT3 is higher in range than her FT4, so not a conversion problem. :)

Kisca profile image
Kisca

Thank you all for your informative comments. It is very much appreciated.

Ive got some other questions relating to this thread. Am I able to post here or do I need to start another thread? X

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