Back again: Hi all, this is the third week on my... - Thyroid UK

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Angelic69 profile image
15 Replies

Hi all, this is the third week on my new batch of T3, i already posted about my energy levels which dropped to zero again and then improved but only after taking my B Vitamins again which i was hoping not to have too as they send my eyes yellow. I do not know if they go yellow because my system is sluggish due to continued thyroid issues or if its normal for your eyes to go yellowish on B vitamins. This is my first issue i would like advice on please guys and gals.

Secondly my perfect balance i have been feeling has totally gone now. I am back to feeling irritated, agitated, confused, unable to focus and not really wanting to take part in everyday business once again. I did start to feel the change one week into my new batch of T3. I feel plain crazy and i have this real strong anger inside me which is making life very difficult. I have had to tell my son to ignore the things i sat which may offend, i feel i have no control over myself and bodily functions at all and my voice sounds strange to me too. My mouth seems to go really tight and its a real job to stop rubbish from spouting out against my will. Please what is happening to me.

Last but not least my eyes look very strange to me and i can honestly say i am not recognising my own reflection as me. My right eye seems enlarged and the pupil does not seem to be responding very well to changes of light. My eyes are also no longer working as a team, one seems to go east the other west which may be why i can not focus on anything and i feel worn down trying to make deliberate eye contact with anything at all. Its like im drifting into a world of my own. i can not tolerate being around my adored son without feeling myself become more and more uncomfortable and anything but calm. I just dont know what is happening to me.

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Angelic69
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15 Replies
LivingWithHT profile image
LivingWithHT

What brand of t3 are you taking?

Angelic69 profile image
Angelic69 in reply toLivingWithHT

liothyronine 20mcg

bn 85761

exp 09/20

custom pharmaceuticals ltd

conway street, hove, east sussex

bn33lw

LivingWithHT profile image
LivingWithHT in reply toAngelic69

Sorry, I’m not familiar with this brand but from the symptoms you have been describing, I’d say you’re not optimally dosed on liothyronine. Some of your symptoms sound like you’re overdosed and others sound like you’re under-dosed. Truthfully, it can be very hard to find the right dosage and you might need to decrease your dosage slightly (by 5 to 10 mcg) and see what happens. If those symptoms decrease in intensity or go away then just stay on a lower dosage and tweak it accordingly but if they persist then you might need a higher dosage. It’s really all about trial and error.

*Edit: one more thing, you said you started feeling the difference once you started the new batch of T3, it could be because there is no consistency in the amount of hormones present in each pill and the batch could be faulty. This has been an issue with many thyroid medications over the years. Perhaps try asking the pharmacist if it’s possible to get a bottle replacement from a different batch?

Angelic69 profile image
Angelic69 in reply toLivingWithHT

I will ask, the hospital dispensed them but i can ask.

helvella profile image
helvellaAdministrator in reply toAngelic69

That address is the company which contract manufactures liothyronine for Mercury Pharma (part of Advanz).

Did you not get a Patient Information Leaflet with them? If not, I urge you ALWAYS ask for one before you accept them from the pharmacy. The PIL identifies the brand, company, ingredients, and much else. A pharmacy MUST supply a PIL, if asked - and should do so without being asked in my opinion.

Marketing Authorisation Holder:

Mercury Pharma Group Ltd.

Capital House

85 King William Street

London

EC4N 7BL

UK

Manufacturer:

Custom Pharmaceuticals Ltd.

Conway Street

Hove

East Sussex

BN3 3LW

This leaflet was last revised in July 2019.

medicines.org.uk/emc/produc...

Do the tablets have any markings on them?

Angelic69 profile image
Angelic69 in reply tohelvella

I did not realise they were mercury and Pharma, i can not tolerate their levothyroxine either they make me poorly , Thank you for pointing it out to me. GS058

helvella profile image
helvellaAdministrator in reply toAngelic69

GS 058 - inherited from when the product was part of Goldshield.

Just why do pharmacies give out medicines without PILs?

Angelic69 profile image
Angelic69 in reply tohelvella

There is one on the bottle i didn't see it until you asked for some information about brand. I had them in the same brown bottle and thought they were the same as before but they are obviously not. The same thing happened to me on another medication too, they came in the same brown tub and they look the same but by god when you take them they are very different. Why are the first batch always less toxic to me.

Angelic69 profile image
Angelic69 in reply tohelvella

The markings on the tablets are GS058

Angelic69 profile image
Angelic69 in reply tohelvella

I can not believe they have given me this type as i am allergic to acacia, now i know why im ill. The pharmacy has just sent me the same in levothyroxine too. They are trying to kill me i swear.

helvella profile image
helvellaAdministrator in reply toAngelic69

Unfortunately, pharmacies have shown that they cannot manage to identify and avoid allergens.

I do not know why this is the case. Twenty or more years ago, computer systems were somewhat less sophisticated and might not have been able to cope with this. I'd have hoped that patients would be able to let pharmacies know of allergens and their systems would handle the situation.

(Actually, it would make more sense for your medical records to record all your known allergies and that be passed on as a part of an electronic prescription. Thus it should apply even if you have to go to a different pharmacy.)

At present, unfortunately, it ends up your responsibility to check every medicine you ever get.

Angelic69 profile image
Angelic69 in reply tohelvella

Again assumption on my part that they would have advanced technology that would state that im allergic to acacia and they already knew this. After feeling so ill i dont think i will be so careless with my own well being again and assume they already know. I will try to return the acacia ridden goods and have them exchanged for the brand i had last time only problem is that bottle did not have a pil with it so i have no idea which it was. I know wockhardt do not add acacia and almus tolerated in the T4 but i have no idea who else does T3.

Angelic69 profile image
Angelic69 in reply tohelvella

I did get a patients leaflet but just assumed they were the same as last times as they came in the brown little bottle, im aware of that now and i thank you making me aware.

jamesal0 profile image
jamesal0

@Anglic69 You sound hyper to me. I have a lady at work who has one eye bigger than the other and she's has hyperthyroidism graves disease. Also the real strong anger - I can get like that when I'm over doing the NDT. Maybe back the thyroid meds down a notch or two.

J

Angelic69 profile image
Angelic69 in reply tojamesal0

Yes, i also just found out the batch i am taking has ingredients that i am allergic too so i guess that has not helped. I have a real issue with some brands due to the acacia they add to the mix.

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