Help ? High antibodies and high Tsh 10.6 - Thyroid UK

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Help ? High antibodies and high Tsh 10.6

Semisonic profile image
8 Replies

Tsh of 10.6 and high antibodies tpo in blood , what next doctors saying sooner or later I am going to need thyroxine . Says I have hadimotos

Is there any other way to treat it rather than drugs

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Semisonic
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8 Replies
Lora7again profile image
Lora7again

I would think you need it sooner rather than later. Go back and insist you are started on Levothyroxine, the starting dose is 50mcg and then you will need a blood test after 6 weeks and then an increase of 25mcg. I find it unbelievable that your Doctor is waiting so you become really ill. How do you feel at the moment?

Semisonic profile image
Semisonic in reply to Lora7again

Feel fine doctor told me to start on 50mg 2 weeks ago but I wanted a tpo test to be sure

Sounds like no other way then really take the hormone

greygoose profile image
greygoose

The treatment is thyroid hormone replacement - usually levothyroxine - T4 - not drugs.

There is no treatment/cure for the Hashi's, all you can do is replace the hormone that your thyroid can no-longer make enough of. And, with a TSH of over 10, it obviously can't make enough.

TSH is not a thyroid hormone, it is a pituitary hormone that signals the thyroid to make more hormone. Your pituitary is signalling pretty hard, but your thyroid obviously cannot respond very well. Therefore, you need to start thyroid hormone replacement now. Right now, before it gets worse and your body suffers the consequences. This is not something to take lightly, because you cannot live without thyroid hormone.

Your doctor obviously doesn't know much about thyroid if he doesn't know that you are already very hypo. Therefore you need to learn about your disease and take control. Otherwise, you will end up very ill. Start by reading on this forum, and asking questions, and also read on the mother site: Thyroid UK. :)

Semisonic profile image
Semisonic in reply to greygoose

Reply thanks for reply doctors been telling me I need to take it but feel fine just wanted to make sure there is no other way then take the tablets

greygoose profile image
greygoose in reply to Semisonic

No, there is no other way than taking tablets. :)

SlowDragon profile image
SlowDragonAdministrator

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common with hashimoto’s and improving vitamin levels to optimal can help reduce symptoms

Ask GP to test vitamin levels

Hashimoto's frequently affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten intolerance. Second most common is lactose intolerance

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find strictly gluten free diet reduces symptoms, sometimes significantly. Either due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

Assuming test is negative you can immediately go on strictly gluten free diet

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)

Trying strictly gluten free diet for 3-6 months

If no noticeable improvement, reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

ncbi.nlm.nih.gov/pubmed/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

ncbi.nlm.nih.gov/pubmed/300...

The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

No way other than thyroid hormone replacement and you need it NOW. Having an underactive thyroid makes you more likely to get heart disease and dementia

SlowDragon profile image
SlowDragonAdministrator

Before considering booking any consultation we would ALWAYS recommend getting full thyroid and vitamin testing done before consultation

Always test thyroid levels early morning, ideally before 9am and last dose levothyroxine 24 hours before test

Email Thyroid U.K. for list of recommended thyroid specialist endocrinologist and doctors

tukadmin@thyroiduk.org

Suggest you write a new post with latest results

Have you had coeliac blood test done and are you on or tried strictly gluten free diet?

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