Questions about T3, : Please please , has anyone... - Thyroid UK

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Questions about T3,

Golli profile image
23 Replies

Please please , has anyone any answers?

WHY, are so many GPS and endocrinologists not clued in to T3 and it’s importance in treating thyroid issues ? There has to be some reason/ explanation . Is it monetary? Is it ignorance . . Is it instruction from the medical council? Is it all of these things.?

If so , how can this happen, is it not malpractice?

So many questions.

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Golli profile image
Golli
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23 Replies
greygoose profile image
greygoose

It's Big Pharma. Big Pharma controls what doctors learn in med school - he who pays the piper, and all that - and it's not in BP's interests to have us get well. If all hypos were properly treated, they would not need all the 'treatments' for the individual symptoms: statins, Beta Blockers, PPIs, and all the rest. And, BP would lose a hell of a lot of money. They don't want that, so they play down the importance of thyroid problems, and make sure that doctors never make us well.

Golli profile image
Golli in reply togreygoose

Thank you for your response greygoose, but isn’t that sooo depressing , and immoral. What a world we live in! Greed is the ruination of our human race.

So many people suffering in the precious time we have on this earth , that mankind are slowly and inevitably destroying.

On that note , all the good people keep striving to be the best they can be , ...

greygoose profile image
greygoose in reply toGolli

It is indeed depressing, and immoral. Human beings can be pretty disgusting creatures. Always have been. Capable of so much good and yet do so much evil. For the most part, I'm ashamed of being human.

teen17 profile image
teen17 in reply togreygoose

Yes l think that is true. But the NHS don't want to have T3 prescribed because it is to expensive but if they gave us the proper treatment we need they would save alot more. Everything always came done to greedy drug companies no matter what the illness is.

greygoose profile image
greygoose in reply toteen17

That is true. But, as I said, Big Pharma holds the purse strings and they don't want us to get better, just keep us alive. Doctors have always been ignorant about T3 even before the price hike.

jgelliss profile image
jgelliss in reply togreygoose

So Well Said GG .

greygoose profile image
greygoose in reply tojgelliss

Thank you. :)

jgelliss profile image
jgelliss in reply togreygoose

GG Your The Voice Of Reason and Facts as they are .

BadHare profile image
BadHare

I’m convinced they swapped the hippocratic oath for the hypocritic oath as they do a lot of harm. 🤠🤡👹

jade02 profile image
jade02

So your combo of T4 and T3 work well for you? I’m just starting it.

Ari3 profile image
Ari3

It’s all about money ...

rosetrees profile image
rosetrees

I recently said to my new GP that endocrinologists are the biggest liars in medicine. Why? I don't know. It takes ignorance of a staggering degree to genuinely not know the basics of thyroid function and to not know that T3 and NDT are available.

Are endos/GPs that ignorant? They might be, but all of them? Really?? I doubt it.

They start life as the more intelligent school students but somehow have their curiosity and desire to experiment and learn surgically removed whilst studying at med school. Where most leave seemingly unwilling/unable to engage with and help their patients.

It has to be institutional bullying (imho). They are collectively afraid of the consequences of acknowledging that they don't know everything and their patients might sometimes know more about their own conditions than their doctors do.

They would rather lie than engage constructively with their patients. We need doctors to stand up for themselves and their patients. Ok, if one did that the GMC would silence them in a heartbeat (which is why they are afraid). But supposed dozens/hundreds did so simultaneously. Then what would happen?

/rant (my new supplements are making me bolshy)

MichelleHarris profile image
MichelleHarris in reply torosetrees

My stepson who I live with is in 5th year med school. I asked him if he was taking Vit C with the Corona virus about but he dismissed that curtly. I knew as well that he would. Ego seems to take over. I know we all want to feel we are competant at something but I want to say to him you know theres humility in listening x

R2d2c3po profile image
R2d2c3po

Whilst it is frustrating for those of us who are not well with the standard treatment for thyroid issues I do not think it is fair to be critical of all doctors. Certain treatments have been set as guidelines and doctors are being trained to follow them. Indeed it was Dr Toft who originally helped write the guidelines not knowing they would be rigidly followed by the NHS without flexibility for those who needed different treatment. He now is highly critical of the NHS approach

My son has trained to be a doctor and even did a masters year studying endocrinology and he was not aware of our issues around the standard treatment. In this litigious world doctors are very wary of doing anything that risks them being sued and losing their licence. I am lucky to have a GP who listens and gives me a private prescription. I think the cost of T3 in the UK is a barrier for progress here. I am interested to see if raising it in the House of Lords has any affect.

I do believe doctors do try the best for their patients. We just don’t fit inside the box the NHS tries to put us in

Golli profile image
Golli in reply toR2d2c3po

Yes I agree there are many good doctors who are out there doing the best for their patients , my G.P. is a good doctor who is compassionate and caring but he has no clue about thyroid issues only the standard treatment of monitoring THS levels and prescribing accordingly. and I find it difficult to correct him as consultantions about any other issues I would totally trust him .

But as there are so many problems around the mismanagement of patients with thyroid probs , there needs to be some way of collaborating information and presenting it to medical council/ nhs/GMC to make all medics aware of the correct treatment. I know Drs are wary of the rules, but there should be some legal way of getting the right treatment.

I know costs are a big factor, and I would love to see the issue raised in the House of Lords!

JennyGT57 profile image
JennyGT57

|The NHS is buying T3 from a Canadian firm - it's c. £450 per pop compared to c. £10 if they bought it from Europe. Someone is making money.

liekki profile image
liekki

I've been wondering about this also.

Basically, I don't think gps or endos really care, since as long as hypothyroid patients are somewhat medicated they are not going to die. Patients quality of life is a secondary worry for them.

No one (important, that is) is going to fault doctors sticking to the monotherapy paradigm, but if they start fiddling outside the standard protocol of care, any adverse health outcomes may be pinned on them.

Also, I would think that most doctors don't have the time or inclination to keep up with the science anyway. Why not just wait for new data to be confirmed and for it to percolate through the scientific community and down to the level of practise? Surely ETA or ATA or some such organization will revise their guidelines, if there ever was a need to revise?

Certainly the hypothesis behind t4 therapy is simple and elegant: ingest some prohormone and let the body sort it out. It's hard to just ditch such a sexy theory.

If combination therapy becomes standard practise with a robust scientific backing in, say, a decade or two, it may be a little embarrassing for the medical community but what have they lost at that point? And they can always point out, that there just wasn't enough scientific evidence before, so they didn't consider it prudent to prescribe an "experimental" therapy...

Two things came to mind also: 1. what if doctors thing that the cure is too good? Meaning that they consider it as doping-like in it's stimulating effect, and therefore bad?

2. I bet health care professionals are a bit miffed about the internet also, propagating all these fashionable ideas about alternative therapies around... (not that that isn't a real problem, though)

humanbean profile image
humanbean in reply toliekki

what if doctors thing that the cure is too good? Meaning that they consider it as doping-like in it's stimulating effect, and therefore bad?

I can't remember the source of this now, but one doctor apparently told a female patient that the only reason she wanted more thyroid hormone is because it helped give her more energy for doing her housework.

Many doctors also believe that thyroid hormones are addictive and they compare them to heroin or cocaine.

Diabetics often need more and more insulin the longer they are diabetic - but doctors don't tell them that they are addicted to insulin.

liekki profile image
liekki in reply tohumanbean

Yes, I'm sure hashimoto patients would take over the world if we were allowed to get our hands on some of that precious Lio... We need a public awareness campaign on the horrible effects of t3; illustrations of kitchen sinks devoid of old dirty dishes, tidy homes, healthy looking t3-abusers with paychecks on their hands...

Ooh, I've got a slogan: Just say no!

And to tell you the truth, how could I be trusted to handle essential thyroid hormones, since I haven't even been able to kick my food addiction?

On a more sombre note, I think it's sad that many people are deprived of a therapy just because a few people might abuse liothyronine. And I'm not all-in on t3 anyway: I've been using for three weeks now, when it's balanced it's pret-ty good but when it's off... it's kinda unpleasent. Apparently I'm a bit sensitive to it.

vocalEK profile image
vocalEK in reply toliekki

I have read that it takes 15 years for research findings to find their way into practice guidelines. I suspect that's wrong. I think it takes long.er.

Manbri profile image
Manbri

My understanding is the cost.

MichelleHarris profile image
MichelleHarris

They dont follow their own protocols though! I was 3 months on 25mcgs, 3 months on 50mcgs, 3 months on 75mcgs, 3 months on 100mgs. They make you wait and then dont reckon in the 3-4 week wait for the blood test. My eyebrows and toenails dropped off. I could hardly walk last year. A year off work - for the NHS ! and I dont have a robust ego so believe me when I say I’m very conscientious. What a waste - of me!

I was just increased to 125mcgs and so ill I packed it in and went on NDT. I just dont trust them now. Disingenuous and no one is listening x

m7-cola profile image
m7-cola in reply toMichelleHarris

Good to hear you are finally on NDT and getting your health on the right track.

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