Hashi's is the cause of hypothyroidism. It's diagnosed by testing TPO antibodies. Have you had TPO antibodies tested? There are other causes, of course, but if you have Hashi's your results are likely to jump around, like yours have. I suspect you do have Hashi's.
No, if the antibodies are there, they will show in the blood test whether you're taking levo or not. However, they do fluctuate, so one negative test is not conclusive. In other words, you can prove you have it, but you can't prove you don't.
You need to get your antibodies - tpo antibodies - checked. This will confirm if you have autoimmune thyroid disease also known as hashimotos. It is important to find out as this will direct treatment and help to explain results.
With hashimotos the thyroid is attacked and slowly finished off. When it is under attack the thyroid puts out more hormones. This could explain the erratic nature of your results.
You need to add the reference ranges beside the result so that we can interpret them. They are usually by the side of the result on a print out, possibly in brackets, eg
TSH: 2.5 (0.2-4.2)
Also, please add what dose of Levo you were taking at the time of each test, put it by the date, eg
Important to have an accurate FT3 result, with range. When on NDT it's usual for TSH to be low, even suppressed, with a lowish FT4 (the T3 does this)
I felt best on 300mg if thyroid s but that was when my T4 was around 30.
Possibly this result:
March 19
T3 8
T4 30
If FT4 range was 12-22 then you were very over range which is most unusual when on NDT. It's FT3 that tells us if we're over medicated, your FT4 is telling us that so it would be interesting to see your FT3 result with the range.
Also, it's essential to know the time of the last dose of NDT before you did your test. Last dose of NDT should be 8-12 hours before test, last dose of Levo should be 24 hours before test.
These results look like swings in levels due to autoimmune thyroid disease also called Hashimoto’s
On your profile you have multiple sclerosis listed.
Hashimoto’s and multiple sclerosis are both autoimmune and often linked
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies
Ask GP to test vitamin levels
You may need to get full Thyroid testing privately as NHS refuses to test TG antibodies if TPO antibodies are negative
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random
Are you currently taking any vitamins?
Low vitamin D is linked to both Hashimoto’s and MS
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