TT 9 months ago due to Graves’ disease. I have been at a TSH under 1 and asymptomatic for 2 weeks in 9 months. I feel absolutely horrible. My weight hasn’t changed, I’m extremely compliant in medication and administration. I take brand name synthroid only. Why aren’t my labs stabilizing? Why have I been undertreated for so long? I AM MISERABLE. I actually feel like I’m dying.
34 yo F. 117 lbs. Graves’ disease for 10 years. My weight has fluctuated between 116-119 post op. I’m Probably 5 lbs of edema. TSH suppressed to 0 for 10 years. TSH became lab measurable 4 months post op.
Started at 88, then 100, then 112. 112 too much, in 7 days I was shooting out of my chair. Dropped to 100/88 split dose. Worked for 2 weeks, TSH 0.58. TSH went up
To 1.5. Went to 100 full time. TSH went up to 2. Stayed between 1.7-2.3 the past 8 weeks on 100.
Started alternating 112/100 this week.
100 didn’t work, then less then 100 did, then 100 doesn’t? What is wrong with me? I want relief. I am painfully swollen and ice cold, bradycardic and hypotensive. My muscles cramp non stop.
You might need T3 as well as T4 or NDT which contains both. Can you post your recent blood tests? We need TSH, T4 and T3. Also any vitamin results you have we need B12, Iron and ferritin, Vitamin D and Folate. All these need to by optimal for the Levothyroxine to work. I have had Graves' disease for 12 years now and I have no intention of having RAI or having my thyroid removed because I know women who have struggled afterwards because they don't get the support or treatment from the NHS.
Do you have any results with ranges? Just the TSH is not a good indication of your thyroid levels. My TSH is 0.38 and I am on no drugs at the moment and I feel well because I am on my second remission because I am one of the lucky ones. Also your Doctor should be testing your T4 and T3. Has he done that?
I am sorry you have left. I hope you are still reading this because there are a lot of people on here who can help and support you. There are women without thyroids and they would be able to tell you what works for them. I am where I am now because of a lot of kind helpful ladies on sites in the USA and UK helped me. The reason this site exists is because we are not being helped by Doctors or the NHS.
If you don't return join Elaine Moore's site in the USA, she helped and advised me a lot.
When you see a user name of Hidden, it means that the person is no longer a member of this forum.
We often close posts that were originated by people who have left - there is no point in wasting our time making replies. Occasionally, the thread might still be active and popular and will be left. More often, it is simply a case of none of the admins noticing!
I shall now be closing this post to replies.
We recommend that you write a brand new post to ask your question.
.
If you wish to call your post to the attention of another member, such as someone on the old thread, you can follow this Help topic:
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Help with weight gain/trouble losing from thyroid being out of whack!
Am I hypothyroid. Appreciate your opinion.
Losing hope with vitamin D 
I have lost hope. 
