Hello all. Am really struggling following RAI treatment in January and would welcome any advice.
I was diagnosed with Graves 7 years ago and prescribed Carbimazole for 1 year and my Endo then stopped it and said to 'wait and see'. I relapsed and he suggested RAI which I resisted. I then took Carbimazole again and although my symptoms improved, I never really felt well. After quite a lot of pressure, I had RAI and by end Feb I was put on 100 Levothyroxine
Results have been:
15/2 T4 24.6 TSH 0.01
21/3 T4 13.8 TSH 5.7
11/4 T4 10.2 TSH 14.4
19/6 T4 18.6 TSH 3.3
22/6 T4 16.0 TSH 2.4
5/9 T4 23.8 TSH 1.1
Serum thyroid peroxidase antibody concentration > 600 IU/mL [< 34.0]
25/9 T4 25.7 TSH 0.17
I saw my Endo in September and he told me to continue with 100 Levo which I queried as I was feeling really unwell. He told me to continue until my next review in six months time. Following this I saw my GP and told him how rubbish I was feeling (most of the Graves symptoms but in addition swollen ankles and weight gain) He did another blood test and expressed surprised surprised at the change in just over two weeks. A further test was done 3 weeks later which showed a further increase in T4 and reduction in TSH. He has now reduced my Levo to 75 and I am to be re tested in six weeks. I am really wondering if I am ever going to feel better.