Hi all.I thought I’d just give a little update since seeking advice here as I’m quite shocked at how I’m feeling after following the recommendations,in a good way of course lol.
I started off on the b complex recommended brand and dose from guys here,then a week later added the b12 spray then the magnesium and the d3/k2 spray.I bought some good quality Brazil nuts and zapped them up in a small blender and I’ve been adding a teaspoon,just every few days,of them to foods for the selenium.
I’ve been really craving salt and oranges no idea why so I bought some oranges in this last couple of weeks and I’ve been adding pink salt to the juice from them ,just every other day for breakfast,which I read was good for the adrenals.
My diet is pretty good I cook mostly from scratch avoid gluten and lactose and have cut down the carbs.
I had a really bad week there of sleep pattern but think I had this because I was under a lot of stress as I’d arranged too many things at home and was struggling to cope.I have learnt from that and won’t repeat.I blamed my increases in veg lol.
This morning I came across the notes I’d written to take to my new gp ,I still haven’t been ,and when I reread them I realised I had made such good progress over these last few weeks it was amazing to read and say well I can knock that off the list,I’m no longer suffering that mad body itching that you couldn’t scratch because it felt so deep in the tissues so it hurt the skin to scratch,no more pounding headaches blinding me hour after hour.no more tingling in my toes or vibrations in my lady bits which drove me nuts.my hair is no longer coming out in handfuls and my nails are a lovely pink again.one major thing for me is my pain threshold has changed,yesterday I splashed my feet with boiling water when at the sink and today I burnt my finger on the iron,I know a complete clutz lol,but normally I’d have been through the roof with the pain from any of these but not this time I barely noticed and just carried on,that’s a massive change for me.
It’s only been a matter of weeks but already I’m seeing differences but didn’t realise until I came across my little list for new gp.im so pleased and can’t thank you all enough for pointing me in the right direction it’ll be quite exciting to see the results of next blood tests and I’ve learnt so much in a good positive way from everyone here.I now have more good days than black days.
I still suffer from my head injury mostly physcological now I guess and I still have my off days but it’s great to know that with your help and advice there’s definately light at the end of the tunnel.a huge thank you again.x
I bought some good quality Brazil nuts and zapped them up in a small blender and I’ve been adding a teaspoon,just every few days,of them to foods for the selenium.
Does the packaging say "Grown in selenium rich soil"? If so does it say which area they were grown in? If not then the chances are you're getting no selenium.
Central Brazil and Eastern Amazon contain the highest amount.
Because most packaging doesn't give this information then the only way to know how much selenium you are getting is to take a good quality supplement.
Hi SeasideSusie thank you for responding I owe you a lot for your advice and I’m so grateful
Yes it says harvested by hand in the amazon forest and naturally high in selenium.m&s natural Brazil nuts.they don’t half make a beautiful creamy addition to home made soup I’m just feeling so positive right now which I’ve not felt for a long long time,I felt lost and alone and just totally screwed by these so called professionals out there,I’m going to plod away doing what I’m doing because even I am astounded to be getting these results so quickly,it wasn’t until I came across that note for new gp that I realised the progress I’d made.huge thank you again for all your help your a gem x
Just a word of caution about the nuts - I love them - used to eat them all the time with every meal - all kinds of nuts. Nuts are very nutritious, but also contain phytates/phytic acid. When something that contains it is eaten, phytic acid binds to minerals like zinc, iron, magnesium, calcium, chromium, and manganese in the gastrointestinal tract, unless it’s reduced or nullified by soaking, sprouting, and/or fermentation. Bound minerals generally cannot be absorbed in the intestine, and too many bound minerals can lead to mineral deficiencies. Animals who produce phytase – the enzyme that breaks down phytate – can thrive on phytate-rich foods. Rats, for example, produce ample amounts of phytase and can handle more dietary phytate without exhibiting signs of mineral deficiencies. Since humans produce around 30 times less phytase than rats, phytate-heavy diets might be problematic for humans.
Some people say soaking them overnight reduces the phytic acid. Since my blood work showed all sorts of vitamin/mineral deficiencies that didn't tie in with the kind of food I eat I have stopped eating nuts with meals. If I do eat nuts I eat them well in between 2 meals so that I'm still getting whatever benefits they give me and they aren't stopping me absorbing other nutrients from my meals. On this basis, my advice would be just eat the brazil nuts as a snack - don't add them to your soup, or else you will be eating soup with brazil nuts in it but getting little nutrition from it. Hope this helps.
Well done and it is amazing when symptoms resolved. If only doctors and endocrinologists could understand also. I'm glad you also feel invigorated by your change of foods/supplements.
Thanks so much shaws but it’s the level of support and knowledge on here that’s pointed me in the right direction I would still be struggling away and any ideas I had were totally dismissed by the gps and consultants that we were brought up to rely on,we didn’t dare question their opinions as we were taught to respect them,as a child growing up my gps were old school and in our slum tenements they knew us as whole families and because they did they’re best and treated us as human beings, as they were meant to ,we loved and respected them but jeez how things have changed, they use the excuse of restricted time which is bollocks,they always have spare time for reps or friends during consulting hours,they tell us we’ll only discuss one symtom which again means they’re incapable of reaching a true diagnosis,I can’t help if I have multiple symtoms which I know now was deficiencies causing this,why can’t they eliminate these basic things before pushing statins or antidepressants on us,and forget ranges they’re only guidelines,go back to symptoms.it just makes me so angry and sadly that trust that I was brought up on has gone now.
Craving salt can be a sign of poorly functioning adrenals. (It could also be a sign that you simply weren't eating enough salt in your diet - salt is an essential part of the diet.)
Look up information on the "adrenal cocktail". It's a concoction that contains a source of salt i.e. sodium, a source of potassium, and a source of vitamin C. There are loads of recipes for it to be found on the web. A couple of links on the subject :
People who take an adrenal cocktail usually take it sometime in the morning. Sometimes people take it two or three times in a day, rather than just the once. But like so much to do with thyroid treatment and related subjects, personal experimentation to find what works or doesn't work is part of the process.
Brilliant humanbean now I get why I’m having certain cravings,clever old body lol.ivealso been wanting coffee with lactose free cream in it,it’s so tasty I use organic caffeine free coffee by cafe direct it’s really pleasant usually only once or twice a day and I have used Himalayan pink salt for quite a few years now.My body obviously know what it wants and what you say about the adrenals makes a lot of sense to me.
I’ve been having pains not daily but on a regular basis,just at my back where kidneys are and I’ve had every test and scan done and my kidneys are healthy but every so often I get this pain ,they said it was just muscular but I’m guessing now it could be adrenal pain so I’ll look into that a bit deeper now.
I have to say a few weeks ago I couldn’t deal with all this my poor damaged head really struggled but now I feel able to read and absorb more than I ever could thank you guys so much I so appreciate all your efforts to enlighten me.x
Hi Redlester thank you for your advice I only grind up the Brazil nuts and put a teaspoon in homemade soup as it’s cooking in the soup maker ,maybe twice a week,it makes it lovely and creamy,I have dentures so it’s a bit like self inflicted torture if I even attempt anything nutty.lol.
I had a ct scan for other investigations recently and it said adrenals normal so I’m thinking maybe I just need to give them a boost with some of the adrenal supplements and I’m also thinking now should I go and see one of the consultants on the approved list as I have so many things to contend with and keep getting diverted so lose my focus.
Ive had a trying 3 or 4 days I’m getting that horrible sensation on my toes again right on the tips of big toes it’s kind of feels like friction burns like they’ve been rubbing on too tight shoes,ive been getting that on and off for last 3 years.im guessing now from what I’m reading here it’s b12 and I found some old blood tests and my b12 has been dropping at each test over the last couple of years but no one said anything and I knew nothing about vitamin deficiency till recently.
I still feel better overall and I’m reluctant to change what I’m doing ie stopping supplementing to have more tests,I’m feeling quite stressed with it all just now so unable to make sensible choices or decisions when I’m like this.
I know - it's not easy. I too suspect I have a vit B12 problem - I'm in range but at the lower end and to do much better I'd need to be much higher in the range than I am. I have long since given up on my GP doing anything meaningful about that so I have just been taking vitamin B12 drops myself - I'm currently at about 500mg per day and they do seem to be making a difference. I take them under my tongue so all of the absorption is done in the mouth. I know if you have pernicious anaemia you are supposed to get B12 injections, but it would be an uphill struggle to persuade my GP that I needed them and given the way they have consistently let me down over the last 20 plus years or so I just don't have the energy for that fight! I hear what you are saying about the dentures - and would imagine it would be easy to add the ground up nuts to the soup - but it still means that you are not going to absorb any nutrients from that soup, or anything else you eat along with it and getting nutrition from food is so important. I realised myself the hard way that you cannot afford to have "dead" meals in terms of nutrition because you eat nuts in or with that meal. What about trying this? Take your teaspoons of ground nuts and make them into a sort of brazil nut butter by mixing them into a paste with a bit of butter and then spread them onto something like a cream cracker and having that as a snack half way between 2 of your meals ?
That’s a great idea I’ll try that makes much more sense than the way I’m doing it and I’ll also continue to put them in my soup because I love the creamy texture.
I’ve been feeling better using the b12 spray plus a b complex tablet recommended by forum members as b12 and folate need each other apparently and like you I do feel a lessening on some symptoms but not all,
My MMA test came back high so medichecks suggested intrinsic factor tests for p.a.but right now I’m mulling over should I keep new gp appointment on the 02nd to discuss or should I go it alone,I have all the paraphernalia I need now to do the injections but I so want a definate diagnosis on my records and just someone to take an interest in my well being.plus I’m scared of the needles lol.
I hope you continue to feel the benefit of your drops I’m hoping my spray is doing it’s stuff I kind of want to wait and get levels retested in April just to see if I am able to absorb without needing injections but it seems it’s not good to delay the jabs so I’ve a lot of thinking and reading to do over this next week.take care and thank you.
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