Results from coming off meds for two weeks due to bloods , now back on them

Jan,15, t4, 25.02,(12/22)TSH, 0.090,(0.27,4.20)normal, jan 20, t3, 4.6 (3.1/6.8, normal, t4,24.06,TSH, 0.73,normal, then from 20jan I was back on meds , 4 feb, t4, 23.9, TSH, 0.97, normal . Receptor antibody level 0.6 normal . Still not sure

[greygoose]

Receptor antibody level 0.6 normal . Still not sure

Is that TSH Receptor Antibodies? TRAB? If it's normal then you don't have Grave's. So, according to your last post, you are on the wrong medication.

Why did you stop for two weeks and then go back on it? I'm not following that bit.

[Hidden in reply to greygoose]

Hi because I had the rare reaction to the carbimazole with the bloods so had to stop , then put me on other two weeks later as t4 had crept up and I was showing hyper signs , so I don’t no I’m really confused , 🤦‍♀️

[Hidden in reply to Hidden]

Yea that was the receptor antibody level it was done in hospital

[Hidden in reply to Hidden]

Thy peroxide’s ab was normal too 🤷‍♀️

[greygoose in reply to Hidden]

What hyper signs were you showing?

[Hidden in reply to greygoose]

Hands shaking , heart going fast mainly in mornings, talking fast just on a go fast all the time really , very anxious,

[greygoose in reply to Hidden]

Have you had an ultrasound on your thyroid?

[Hidden in reply to greygoose]

No nothing as no swelling or nothing he only said over the phone prob graves as didn’t mention that at my appointment it was only cause I phoned up about my t3 results being normal , going to ring again on Monday

[greygoose in reply to Hidden]

Yes, you really should get to the bottom of this.

[Hidden in reply to greygoose]

I shall but it’s getting me down as all I seem to b doing is ringing them up and getting no where as all my test come back normal apart from my t4 just a little high, and he also said he didn’t think I would b on tablets for that long then next min his saying prob graves so I don’t get it

[greygoose in reply to Hidden]

I don't think there's anything to get. I think he just has no idea what he's doing. If your TRAB is normal, then you do not have Grave's. I think you should maybe point that out to him.

[Hidden in reply to greygoose]

Yea I have and apparently their is a letter in post for me , on my notes to the doctor it didn’t mention graves either

[greygoose in reply to Hidden]

Let us know what the letter says when you get it, because this is a rediculous situation. I can't understand it.

[Hidden in reply to greygoose]

Yea will do , I’m really not coping as keep looking for signs like eyes and stuff it’s getting me down

[greygoose in reply to Hidden]

I think such incompetence would get anybody down. Hope the letter arrives soon.

[Hidden in reply to greygoose]

They said it should b here by Monday, prob won’t tell me anything but will see 🤦‍♀️

[Marz in reply to Hidden]

Did you get the letter ? - what did it say ?

[Hidden in reply to Marz]

Yea sorry , yes did get letter just said that those test negative and that I don’t have Graves but I do have a over active thyroid so to stay on the dose I was given , but I’ve just had bloods and t3 t4 ‘tsh are all normal which is good , so now got to see about meds now as not sure what I’m doing as I no I prob need them so it don’t rise again but then I don’t want them to drop any lower or it will go past my normal 🙈 so just waiting on a call from doctors to see if I need to reduce my dose

[Marz in reply to Hidden]

Perhaps you have Hashimotos when your results can fluctuate suggesting both Hyper and Hypo ..

[Hidden in reply to Marz]

Hi was tested for that to and it was negative aswell,

[Hidden in reply to Hidden]

My t4 was 29 before ,

[Marz in reply to Hidden]

Sorry Ponk - you make it so difficult for us to help. We need more information- WHICH anti-bodies were tested ? We are not mind readers 🤩 I appreciate you are poorly but so are we !

[Hidden in reply to Marz]

Sorry getting confused who I’m replying to , I have seen my results as have on line

[Marz in reply to Hidden]

You are replying to Marz - I went to your older thread to try and understand more !

[mistydog]

Did they not measure your T3 the second time?

[Hidden in reply to mistydog]

No cause they tested on 20 jan, then went again on the 4 of feb so I surpose it was only two weeks apart , they were only really checking the white and red bloods cause of the last reaction with carbimazole , but my doctor gave me a form for t4, and TSH too

[mistydog in reply to Hidden]

I might have been known to add T3 on the bloods form.

[Hidden in reply to mistydog]

I did think of that but they were only done 2 weeks ago and got bloods again in 3