Help totally confused

[Nellups]

Right after nearly two years of fighting the NHS for my tablets I’m on from France, I thought I had finally got sort before Christmas. I had a call from the surgery saying they were willing to give me the forms needed to get my prescription from the pharmacy or I could try a lactose free liquid form that’s licensed here.

So forward a month seen my consultant told him what they had said, he was overjoyed that they could do it, as the hospital pharmacy had refused. So he sent a letter off to my doctor agreeing to prescribing the medication AND to add T3.

I should have known what would happen 🤦🏼‍♀️

Phone call yesterday from pharmacy section of GP surgery, no they can’t get me my medication, and there are no forms to fill out to get them ( I’m obviously a lier) and if I want the T3 then I have to have the normal T4 available with lactose as the T3 contains it. Or the lactose free liquid but no T3 ! What the hell!

Anyway looks like they are going to try my back to the normal and I have to have what ever the pharmacy can give me! But mark if I have problems to put me on the liquid one.

I am scared about going backwards, would like to have stayed my medication what do I do ? Can’t believe they have turned this all around after getting my hopes up.

Oh I did ask why I couldn’t have NDT as have no thyroid that went down like a ton of bricks

[Lora7again]

I see the Consultant has written to your GP (I am retyping this) so the GP should follow his instructions. I would contact your consultants secretary and tell them what is happening because this is so wrong. Also if you can afford it you can buy what you need online that is what I did and other members do on this forum because Doctors have refused to help us.

[SlowDragon Administrator]

If you are lactose intolerant then you need lactose free medication. Pharmacy can’t deny you this and of course there’s lactose free T3

Teva T3 is lactose free

List of UK medication available

thyroiduk.org/tuk/treatment...

[Nellups in reply to SlowDragon]

She said there were no lactose free T3 😡

[SlowDragon Administrator in reply to Nellups]

Yes exactly.....doesn’t know what she’s talking about

[Poppy_the_cat]

Sadly having experienced a similar issue/ obtuse, ignorant outcome, in the sense of dealing with & attempting to replicate a medication from 'abroad'... I hate to say it but I feel there is a certain 'tribal resistance' to anything that comes from abroad! I've experienced it first hand. So apart from anything else you will be dealing with a certain cultural resistance dare I say it.

In a different instance, once when discussing calcium the chemist's assistant said 'ah well, they don't really eat as well as we do on the continent, so it's to be expected that they need supplements!' My grandfather who was a doctor was left speachless!

Don't give up.

Keep hammering away.

Thinking of you.

Poppy the 🐈