Thyroid causing ectopics.?: I had rai in 2012.... - Thyroid UK

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Thyroid causing ectopics.?

anetap4545 profile image
25 Replies

I had rai in 2012. 7 yrs ago. 3 years later got ectopics. Dones all the tests. Say heart is ok.im managed on thyroxine. Will magnesium work as im on thyroxine or will i have this forever ? I'm crippled by it. im taking thyroxine and levels go up and down. I'm monitored every 3 months. Pleas help i want ectpics gone they are crippling me. All i take is cq10 and beef liver. Where are they coming from how do i get rid of them.

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anetap4545
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SeasideSusie profile image
SeasideSusieRemembering

im taking thyroxine and levels go up and down.

How are you doing your thyroid tests? To compare results accurately the tests need to be done under the same conditions every time. When doing thyroid tests, we advise:

* Book the first appointment of the morning, or with private tests at home no later than 9am. This is because TSH is highest early morning and lowers throughout the day. If we are looking for a diagnosis of hypothyroidism, or looking for an increase in dose or to avoid a reduction then we need TSH to be as high as possible.

* Fast overnight - have your evening meal/supper as normal the night before but delay breakfast on the day of the test and drink water only until after the blood draw. Eating may lower TSH, caffeine containing drinks affect TSH.

* If taking thyroid hormone replacement, last dose of Levo should be 24 hours before blood draw, if taking NDT or T3 then last dose should be 8-12 hours before blood draw. Adjust timing the day before if necessary. This avoids measuring hormone levels at their peak after ingestion of hormone replacement. Take your thyroid meds after the blood draw. Taking your dose too close to the blood draw will give false high results, leaving any longer gap will give false low results.

* If you take Biotin or a B Complex containing Biotin (B7), leave this off for 7 days before any blood test. This is because if Biotin is used in the testing procedure (which most labs do) it can give false results.These are patient to patient tips which we don't discuss with doctors or phlebotomists.

Do you have any recent results you can share? If so please post them, along with their reference ranges, and say when you took your last dose of thyroid meds and what time the test was done, also what dose of Levo you were on at the time of the test.

Some forms of magnesium are good for heart health, you can check out the different forms and what they are useful for here:

naturalnews.com/046401_magn...

drjockers.com/best-magnesiu...

afibbers.org/magnesium.html

If you do take magnesium, remember to take it 4 hours away from your thyroid meds.

anetap4545 profile image
anetap4545 in reply to SeasideSusie

I'm concerned about ectopics

SeasideSusie profile image
SeasideSusieRemembering in reply to anetap4545

I'm concerned about ectopics

Yes I read that but nobody here is medically qualified so can't tell you where they have come from or how you can get rid of them. What we can do is look at the other things you've mentioned:

* im taking thyroxine and levels go up and down. I'm monitored every 3 months - levels going up and down aren't normal, and monitoring every 3 months is very unusual, hence me asking about your test results and how you do your test. You may or my not be optimally medicated. You may have autoimmune thyroid disease (Hashimoto's), which is confirmed by raised TPO/Tg antibodies, and that can cause swings from hypo to hyper and result in symptoms of both. All relevant questions to try and help you in the absence of further information.

Here is a previous tread about hypothyroidism and ectopic heartbeats: healthunlocked.com/thyroidu...

* Will magnesium work - I have given you links to check which form of magnesium may possibly help

And while we're at it, are your nutrient levels all optimal, that is optimal for a hypo patient and not just "in range" which is all doctors care about:

Vit D - 100-150nmol/L

B12 - top of range for Total B12, over 70 for Active B12

Folate - at least half way through range

Ferritin - half way through range

humanbean profile image
humanbean in reply to anetap4545

Low magnesium is implicated in many types of arrhythmia.

See the links in this post :

healthunlocked.com/thyroidu...

and follow the other links within that post. Also read the comments on the blog posts linked to.

Other things affecting heart rhythm and/or palpitations are low iron/ferritin which must be tested before supplementing because iron is poisonous in overdose. Also low potassium affects the heart, and so does low vitamin B12 and possibly low folate. Low sodium (or salt) is another common issue affecting the heart rhythm.

Den1987UK profile image
Den1987UK in reply to anetap4545

Hello anetap good morning I was diagnosed hypothyroidism 2 years ago and have hypertension high blood pressure and Tachycardia and Raynauds disease possibly because of hypothyroidism. My brother recently diagnosed with the same condition hypothyroidism and he has a hole in his heart and asthma. I think it’s because the heart is a muscle and a brain we have 3 brains the brain the heart and the stomach as well. The heart needs a lot of T3 to function. As for where they come from it comes from your vega nerve and the electrical signals in your heart. Also the cause is PVC premature ventricular contractions or PAC premature atrial contractions. Being low in magnesium and stress and smoking and alcohol and caffeine and other factors like diabetes Hypokalemia low potassium levels can cause ectopic palpitations and enlarged heart and decrease in blood supply. Speaking to your doctor about possible causes and getting your vitamin levels checked mainly B vitamins and Folate and Ferritin and D3 and also a blood test for potassium levels and magnesium levels and getting blood tests for blood supply and blood flow problems. would and a scan of the heart to check for enlargement be good things to do. I know Raynauds Disease poor circulation can cause palpitations even anxiety can cause ectopic palpitations. There are medications to help like beta blockers but beware of suppression of T3 because can cause or worsen suppression of conversion from T4 to T3. Eating vegetables and fruits like pomegranate and bananas and bell peppers and asparagus and onions and tomatoes are good for heart health.

Hope this helps.

SlowDragon profile image
SlowDragonAdministrator

On Levothyroxine it's common to have low FT3

For full Thyroid evaluation you need TSH, FT4 and FT3 tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially after RAI for Graves' disease

Ask GP to test vitamin levels

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Is this how you do your tests?

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies

thyroiduk.org.uk/tuk/testin...

For thyroid including antibodies and vitamins

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

Cheapest option for just TSH, FT4 and FT3 £29 (via NHS private service )

monitormyhealth.org.uk/thyr...

As you have Graves' disease and you on strictly gluten free diet?

If not, this is always worth trying

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

Assuming test is negative you can immediately go on strictly gluten free diet

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

Add your most recent blood test results and ranges

Or come back with new post once you get results

Ask for a referral to cardiology where you should get a 24 hour (at least) Holter monitor and possibly an echo cardiogram

anetap4545 profile image
anetap4545 in reply to Angel_of_the_North

Have had all done. All ok just ecropics picked up

Angel_of_the_North profile image
Angel_of_the_North in reply to anetap4545

They'd have told you if it was a real problem. I decided not to take beta blockers as the cardio said it would make my asthma worse. I was getting runs of 4or 5 in row pretty much all day, but with more T3, plenty of magnesium and meditation, I now hardly notice them. I did take a hawthorn and arjuna capsule for a while when it was really bad.

anetap4545 profile image
anetap4545 in reply to Angel_of_the_North

So magnesium did help you? Also you take seperate t3 medication from levo meds?

Angel_of_the_North profile image
Angel_of_the_North in reply to anetap4545

I take T3 only and magnesium did seem to help - also the mediation was really useful - made it more noticeable at first as you can always feel ectopics more when you are quiet a d still, but then they got better.

anetap4545 profile image
anetap4545 in reply to Angel_of_the_North

I'm confused. Who recieved you t3. I've seen 5 euros and everyone of them say im within range and asked them about t3 and they say its not necessary and rarely used. You think if i take mag it will help im scared

Angel_of_the_North profile image
Angel_of_the_North in reply to anetap4545

I take T3 because I don't convert T4 to T3 well. I have to buy my own. Many people don't convert well. I would try magnesium. The worst that can happen is that you'll spend a lot of time on the loo if you take too much

anetap4545 profile image
anetap4545 in reply to Angel_of_the_North

Pleas im scared to.live i need help they fear of them cripple me. 5 years too long is my thyroid giving them to me or low magnesium or??

Angel_of_the_North profile image
Angel_of_the_North in reply to anetap4545

I had them long before I was hypo - had them for at least 30 years(but not as bad).

Den1987UK profile image
Den1987UK in reply to anetap4545

Hello anetap have you had a scan done on the heart to check for enlarged heart or chambers of the heart and have you had blood flow checked. Also Main thing that won’t help is being stressed or worrying or being anxious too much just getting the tests done but not worrying is key. I stopped smoking a year ago and don’t drink alcohol or drink caffeine and that helps. Also plenty of bananas pomegranates and garlic asparagus carrots bell pepper and tomatoes and garlic are good for blood flow and heart health.

anetap4545 profile image
anetap4545 in reply to Den1987UK

I did normal eco result

Den1987UK profile image
Den1987UK in reply to anetap4545

Hello anetap ECG can tell a lot of things but not all problems. A scan on the heart and 24 hour ECG will help. Also getting blood tests for vitamin levels and blood test for high LDL cholesterol and CRP inflammation and checking for blood flow problems will help. Hypothyroidism and heart conditions and cardiovascular problems go hand in hand also hypothyroidism causes nerve damage. I was diagnosed with hypothyroidism 2 years ago and because of not taking care of myself better and being under medicated only on 50 mcg Levothyroxin I now have Hypertension high blood pressure Tachycardia Raynaud’s disease and Polycythemia and carpal tunnel syndrome nerve damage. My brother recently diagnosed with hypothyroidism same condition as me has a hole in his heart archaic disease and asthma. Two brothers with same condition and similar problems.

anetap4545 profile image
anetap4545 in reply to Den1987UK

I did all tests. Echo which is scan. How did you know your dose was low amd made u sicker? How can i avoid that im terrified for heart problems

Den1987UK profile image
Den1987UK in reply to anetap4545

Hello anetap I knew I was under medicated because I was feeling good and okay a year ago but then the brain fog kicked in and the anxiety beyond belief and hair strands falling out palpitations head aches and depression and fatigue and feeling breathless and feeling unwell and recurring infections. I went to my doctor he did a physical and checked my pulse and heart rate and temperature and blood pressure my doctor said I had a fast heart rate and pulse and high blood pressure and fever and he suspected Sepsis blood infection so referred me to Hospital A &E the hospital checked my pulse and heart rate and blood pressure and then had to wait to be booked into hospital then they put a saline big needle in my arm and took loads of blood to do blood tests for Sepsis and other conditions. I then had a urine sample done and ECG done and MRI scan on the heart. The doctors came back and said that was dehydration due to infection and swollen glands and put me on a water drip. All this as a guy on my own in hospital all day at 32 years old. I was eventually allowed to leave hospital with antibiotics. I have been on 10 different antibiotics because I had mononucleosis virus with infections since 2 months ago. During this time this is when all my hypothyroidism symptoms showed up. I was eventually diagnosed with stage 2 hypertension high blood pressure and Tachycardia and Raynaud’s disease poor circulation cannot tolerate very cold weather makes my fingers and toes turn blue. I also have Polycythemia thick blood platelets. Also have poor memory and nerve problems. I was put on 75 mcg for 4 months Levothyroxin no change or difference now on100 mcg still feel not right but better. All these conditions I mentioned are all linked with hypothyroidism.

As for ways to avoid ectopic palpitations sometimes you inherited them can’t avoid them. Or sometimes it’s due to medication side effects and lifestyle. Giving up smoking and caffeine and alcohol helps a lot so does a balance healthy diet also helps. And ultimately being on the right dose of Levothyroxin or other medication helps. NHS guidelines state patients eventually need 100. Mcg to 200 mcg of Levothyroxine a day depending on certain factors. Also beware of poor conversion from T4 to T3 because the perpituary gland at the base of the brain at the back of the brain which can be due to parathyroid and also Thyroiditis thyrotoxicis and nodules on thyroid and Hashimotos autoimmune thyroid disease. Hashimotos can also cause leaky gut. Also avoid anything with Soya in the ingredients and gluten free diet helps and blood test for antibodies tg and tpo can help detect whether you have Hashimotos or not. Also getting a full blood count blood test and CRP and LDL cholesterol the bad cholesterol is a good idea and getting vitamins checked and optimal. Also in some people like myself Hashimotos can cause you to be both hyper and hypo. Also lowering sodium and salt is good for heart health. Use natural sea salt instead. Too much sugar or too little is not good either. Also cut down on cooking oils and butter to lower cholesterol. Food that is good for heart health like pomegranate and asparagus and garlic is good for stopping heart palpitations. Also fatty fish rich in omega 3 is very good for heart and brain health.

AmandaK profile image
AmandaK

I just so happen to have come across the following, which shows how hypothyroidism affects the heart (it mentions ventricular ectopics):

drsanjayguptacardiologist.c...

Dr Gupta, from what I can gather, is very approachable and there is the option of contacting him with queries through his site.

He is based in York at two hospitals, one NHS and the other private. There is no mention of costs on the website, which is a little worrying, but he might be willing to answer a simple question and suggest further options/treatment.

Hope this helps.

Den1987UK profile image
Den1987UK in reply to AmandaK

Hello AmandaK good afternoon. yep untreated or under medicated hypothyroidism can cause heart problems and circulation problems and cardiovascular disease due to a rise in bad cholesterol LDL which leads to strokes and heart attack and cardiac arrest and heart failure.

anetap4545 profile image
anetap4545 in reply to Den1987UK

I see my endo every 3 months he says im ok but i feel so bad

Den1987UK profile image
Den1987UK in reply to anetap4545

Hello anetap4545 good evening do you have latest blood test results for FT4 FT3 and antibodies tg and tpo and vitamin B12 and D3 and Ferritin and Folate and Magnesium because depending on blood test results you could be low on T4 T3 or your vitamin levels are low and that will cause you to feel unwell. If you can you should ask for a copy of your blood test results and medical records from your endocrinologist or your doctor. Then post online onto the forum that would give an indication as to what your FT4 FT3 and vitamin levels are. We can then advise you if there is a problem. Also what dose of Levothyroxin are you taking Currently?

If you have had Radioactive Iodine Treatment for graves previously then yes you will have Hypothyroidism for life unfortunately because your thyroid has been de activated and cannot function without Levothyroxine or T4 and T3 so yes it’s a life long condition. But if managed properly you can lead a decent life but there will be ups and downs as I know.

anetap4545 profile image
anetap4545 in reply to Den1987UK

I'm on top of or all but can my thyroid be ok and have ectpics forever?

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