For anyone who is new to this thread and dives into the weird world of blood tests, supplements , diet advice in a frantic effort to fix the myriad of symptoms - I can report back a total recovery is actually possible. Note, I am not saying a total cure of the disease.
I have recounted the story before on other threads, but if you have not read them I have gone from TSH of 30 plus large goitre to barely being able to mow a small lawn to full on half marathon training. Last weekend. I ran 10 miles on Saturday followed by 8 on Sunday - and to prove it was not a fluke did another 10 mile training run today. I have finished the run with plenty of get up and go.
I wrote a month ago here that I felt I had 99% of my life back and I actually think i will end up better off than 4 years ago.
In a way I am grateful for the illness as it forced me to fix my way of life into something more balanced.
So my Christmas message of cheer is that however disastrously you feel, it may be possible to turn things around - to potentially a significant degree.
I do send my best wishes to everyone here and hope everyone makes the progress they need in 2020.
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Danielj1
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We need to take a wish in the New Year that the guidelines laid down, will be replaced with ones that actually are able to diagnose thyroid problems without blood tests and go by our symptoms alone and given a trial of thyroid hormones. This is how it used to be done and the NHS will save lots of money re blood tests etc.
My other wish is someone would do large scale research on taurine as one day I suspect it will be seen like magnesium and vitamin D as a “must have” for thyroid sufferers
It worries me slightly that I appear to be the only person on thyroid UK using this as a core supplement ...
Taurine? Interesting! Are you a vegetarian or vegan? I would think that might cause low taurine as one of the main sources is meat and other animal products. Some carnivorous animals, especially cats, can't make taurine at all (most humans can) so have to have it.
I haven't found anything suggesting that hypothyroidism can cause deficiency, but you never know!
This relates to rat research - there is other research on humans, not to my hand.
The prevailing model with hashimoto is that the thyroid is dying away either quickly or slowly and the outcome is only going one way. Whatever you take will only delay and cope with the inevitable breakdown and loss of the thyroid. So when I read that taurine appeared to repair thyroid function I got rather excited. This is only a very small part of what it does - it appears to assist aerobic function and helps with training etc.
I have not kept all the articles I read so I am not really explaining this in any sensible way, so you may be better off doing your own research.
Having tried literally every supplement known to man (linked to this illness) I have chucked out the vast majority and if I had to live for the rest of my life from only two - I would take magnesium and taurine. I also take selenium , zinc , copper and D as everyone recommends it - my life does not feel it would change that much if I stopped them, but would never if at all possible would give up the favoured two.
I accept this makes me an exception on this thread, all I know is my life all but “stopped “for two years and now is reclaimed so I have no need to search further.
The lack of available research means there is absolutely no reason for anyone to copy what I did - I was prepared to try anything and everything to get well and take the risks implied for good or bad. A doctor would insist you follow a plan linked to blood tests etc.
If anyone does find some of the old research articles on the web from Japan and America they were awfully compelling for me....
It’s great to hear positive stories which provide hope to others suffering Danielj1. Do any of your other posts describe the steps you took to get back to health? Or your use of Taurine? Thanks
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