So how are you doing on your current medication... - Thyroid UK

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So how are you doing on your current medication? Great, rubbish, getting there...

charliecooper profile image
6 Replies

Following on from my last question linked below and Carolyn's response ( cant believe it was a week ago, oops!), if you are taking any thyroid medication, what dosage are you on, and are you well on it or not?

The reason I am asking this is that I am wanting to know what is the average dose for people to feel good (I know we are all different though), and if I am taking way above most people therefore an indication of something else going on.

I am taking 85mcg T3 Liothyronine. I have only felt improvement when I initially took it, and recently when I went up to 80 but nothing of note in-between. Is 85 (possibly going to take more eventually) a lot to take compared to everyone else?

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charliecooper profile image
charliecooper
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sporty333 profile image
sporty333

I'm up to 70 mg of T3 now. I'm feeling better than i did on armour.....but still now well :0/

PinkNinja profile image
PinkNinja

I'm on 100mcg now. I worried like you did and reduced my dose to 75 because I kept feeling hot and really rubbish (faint, headachy, sleepy, grumpy, possibly a few other dwarf names...) but it turned out I had a sinus infection. Silly me! I increased back to 100mcg and am noticing the improvement again.

Some people find they need a higher dose initially if they have a problem with reverse t3 and that, after about 3 months, they suddenly find they don't need that much any more as the rest of the rt3 clears. That's why, if you suspect you have a reverse T3 problem, it is important not to go too high in the first 3 months (I think I read somewhere not to go above 125mcg until the reverse T3 clears or you can suddenly go hyper for a short while when it clears).

There are people on significantly more than this. Tissue resistance can play a part in what dose you need.

I feel relatively well on 100mcg. I don't know if this is how I am supposed to feel because it is such a long time since I felt 'normal' so I can't remember what it is like, but I am very much better than I was before starting t3 and I can function pretty well most of the time :)

Carolyn x

shaws profile image
shawsAdministrator

Just for your information, I think you will find the following link of interest. Some of the topics at the top of the page may not be accessible - an excerpt:-

One such patient was reported by Kaplan and colleagues in 1981.[1] To be healthy, the patient had to take 500 mcg of T3 per day. Testing showed that she didn’t have impaired T4-to-T3 conversion, and she didn’t have mutated beta-thyroid hormone receptors. Despite this, extensive testing showed that when she took this large amount of T3—and only then!—her metabolism was normal and she was free of symptoms. Importantly, she also had no tissue overstimulation.

.

web.archive.org/web/2010103...

web.archive.org/web/2010103...

nightingale-56 profile image
nightingale-56

Was reasonably well on 75mcg Levothyroxine until 6 years ago when antibiotics upset things completely. Beginning to see improvement again at present. Janet.

vgam profile image
vgam

On t4 75mcg...some symptoms such as mood swings , weight gain and hair loss still present...

oldgreybird profile image
oldgreybird

I am on 100mcg of levo and am feeling well on it. The endocrinologist wanted to increase the dosage to 125mcg last summer for various reasons. However, the reaction to the increase was horrendous - constant anxiety, panic attacks etc - so I decided to stop taking anything and then started to gradually build up to 100mcg again and am now back to feeling 'normal'. I shall refuse to have my medication fiddled with again unless my general well being changes in the future and I feel it is necessary - not the endo or GP deciding for me.

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