So many meds and symptoms

[roo1]

Hi all...

Iv been on levo for about 20 years after iodine treatment as couldn't get levels down..

My current dose is 175mg a day...

I was told had vit d deficiency a few years ago so now take a supplement 1000iu...

Iv been poorly for last few months with alsorts and gp not been too helpful iv had to keep going back asking for various tests finally I've been referred to look at menieres disease and iv also got very low folic acid so now on daily 5mg..

Also told slightly anaemic so been advised to take 210 mg s day of this too which I took today. ..

I'm also taking betahistine for severe vertigo and sickness...

The last 10 days iv felt a bit better but find I'm gassy as in belching yet not sure if can take an antacid with all these meds...

Also get headaches and hav found my vision worse when reading but optician booked...

Also having to try and get used to hearing aid for tinnitus and loss of hearing in one ear...

My main questions are :

Any advice on best way to take meds as I know some dont go well together... I normally take thyroid... Vit d blood pressure meds am then betahistine hour later... Folic acid at lunch with betahistine then betahistine in eve with iron....

Can I take an antacid? If needed...

Could all the vitamin problems have lead to vertigo?...

Is a lot if this linked to my thyroid 😏...

Sorry for such a long post...

Advice feedback appreciated 🙂

[greygoose]

Vit D, iron, calcium, magnesium and oestrogen should be taken at least four hours away from thyroid hormone. All other supplements and medication at least two hours away.

And iron should be taken at least two hours away from everything else, except vit C.

Have you had your B12 tested? If that is low it can cause dizziness.

[roo1 in reply to greygoose]

Yes they checked b12 that was fine...

So I need to rethink how I take meds then... Will have to look at new schedule...

I hate it feels like life just about meds but if they work needs must I suppose...

The vertigo and accompanying symptoms have been awful and scary and often go on for 24 hrs or more and takes me couple of days to settle...

Last 10 days have been bit better though so hopefully meds are helping..

Thank u for Yr response

[greygoose in reply to roo1]

Your B12 was over 550, then?

[roo1 in reply to greygoose]

I honestly don't recall I know she said was fine and on screen was in normal range...

I will ask again next time I'm there...

[greygoose in reply to roo1]

Yes, best to make sure, because for a GP, anything anywhere in-range is fine. Not so for the patient. And B12 should be over 550.

[BadHare in reply to roo1]

My B12 was NHS fine, but not fine for me as my tinnitus sounded like a car alarm. The blood tests are often inaccurate, proved in my case, & I now self-inject weekly. It might be a good idea to get your results to check as GPs seem reluctant to prescribe unless they have to.

The PA forum is helpful, so perhaps post your symptoms there.

[roo1 in reply to BadHare]

Thank you for Yr response I'll pop into gp and request a print off of latest results.

My tinnitus has been a problem for a while but more recently its much worse on and off and my hearing has reduced..

They think possibly long term labrythitus or Menieres disease...

PA forum?

[humanbean in reply to roo1]

healthunlocked.com/pasoc

Pernicious Anaemia Society forum.

[Lalatoot]

Have you had your Ft3 tested or have the docs only done tsh and ft4? Your Ft3 could be low giving you symptoms even though your ft4 level is fine

[roo1 in reply to Lalatoot]

I think they usually test tsh and t4 and I'm always told its within range but as iv said to go everyone is different... Iv asked for referal to specialist but been told there's no need...

[Lalatoot in reply to roo1]

I was on levo for 4 years and never felt right even though they kept telling me my results were okay. It was only when I got Ft3 tested at the same time I was able to see that I wasn't converting the ft4 effectively and my Ft3 was at the very bottom of the range. Luckily thanks to folks on here I was able to spoonfeed this info to a listening gp and then an endo so now I have t3 added to my levo. Early days but I am improving.

[roo1 in reply to Lalatoot]

Glad to hear you are improving.

I've always been tired never felt 100% but go just blames menopause or lifestyle and more recently the vit deficiency.

I will ask when get next lot of bloods done..

Thank you...

[cazmania7]

Your Drs probably won’t test your T3. You might need to do a private test through blue horizon or medichecks. You could do with getting results and posting here. Just because Drs say results are normal, that doesn’t mean much!

[roo1 in reply to cazmania7]

Iv come to realise this but not sure how to go about doing it privately... May hav to do some research on it...

Thank you...

[cazmania7 in reply to roo1]

Thyroid Plus 11 is the test to buy from Blue Horizon (I think). Tests your ferritin, Vit D, B12 and T3 T4 and TSH. Kit comes in post. Get someone to take your blood (my local survey does it for £30) then return the kit with blood sample in post then you’ll be emailed the results. We can have a look on here and maybe offer advice

[roo1 in reply to cazmania7]

OK I'll hav a look I found medichecks... £79 but may well be worth it...

Thank you

[cazmania7 in reply to roo1]

Knowledge is power!

[roo1 in reply to cazmania7]

Yes if can get gp to take note.. If not may need to move surgery...

[Treepie]

Take your levo before bed or middle of night if in the habit of needing a pee.

[roo1 in reply to Treepie]

I don't always nerd to pee... Always thought levo best in the morning on empty tummy?

[Treepie in reply to roo1]

Some recent research I read on here suggested better absorption taken at night.In any event I have found no problem with it and it ensures at least 4 hours gap between meds.

[humanbean]

I was told had vit d deficiency a few years ago so now take a supplement 100iu...

100 iU per day as a vitamin D supplement is completely inadequate. In hypothyroid people absorption of minerals and vitamins is poor. Many of us need 2000 iU per day just to maintain an optimal level.

And getting to an optimal level in the first place could take a dose of 3000 iU - 10,000 iU per day for some months - but it depends on how low the vitamin D level is to start with and how well people absorb their supplements.

Vitamin D supplements can be bought online very easily in varying dosages, no prescription required. There are also other mineral and vitamin supplements that are needed to be taken at the same time as vitamin D to get the most benefit from it. But get your results first, and then post them.

[roo1 in reply to humanbean]

I did have prescribed vit d supplements for some time and levels were maintained so gp recommended 1000ui which iv taken for abt 2 years...

I will request print offs from gp of all of this years results...

It seems gps are reluctant to address issues it's taken me months of being ill and asking for tests to get to this point....

Kept just brushing it off...

Now on ferrous fumarate 210 once or twice a day...

Folic acid 5mg a day... To be reviewed in 4 months...

[humanbean in reply to roo1]

In your earlier post you mentioned taking 100 iU vitamin D. Big difference from 1000 iU per day...

[roo1 in reply to humanbean]

Sorry prob typed it in wrong... Iv just checked its def 1000iu...

Ill check post and edit if needed...