Not optimal : I know everyone is going to say not... - Thyroid UK

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Not optimal

Itileguy profile image
24 Replies

I know everyone is going to say not optimal but I can not get my doc to increase

Do I have any other options to add to my 105 Armour ?

Still cold and energy not great

TSH 1

 0.076

0.450-4.500 uIU/mL Below low normal

T4,Free(Direct) 1

0.99

0.82-1.77 ng/dL

Triiodothyronine (T3), Free 1

3.3

2.0-4.4 pg/mL

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Itileguy profile image
Itileguy
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24 Replies
greygoose profile image
greygoose

Optimal is not a number. It's how you feel. So, how do you feel with those results?

What do you mean by 'other options to add to your Armour'? If you need an increase in dose, the only option is to add more hormone. It could be more Armour, or it could be synthetic T4, or synthetic T3, depending on which one makes you feel best. But, you can only replace a hormone with a hormone, not a vitamin or a mineral. :)

Itileguy profile image
Itileguy in reply togreygoose

Yes I feel like more Armour but not going to happen as doc actually wanted to cut back by 15

But I asked if I could stay on the 105

I just have no energy and am cold

was doing great on np for about 7 months

Then my new script smelled nasty and tasted nasty and that’s when I also noticed some symptoms returning while on the nasty np

I asked to switch to Armour

Only been 3 days on Armour maybe I need to give it more time

But I do realize they have the same equivalent of t3 and 4

And I do know the only way is with more hormones

Just thought there might be something else I could do

greygoose profile image
greygoose in reply toItileguy

Yes, 3 days is not long, is it. But, your doctor is only looking at your TSH - silly man! - and not your FT3, which is the most important number.

Itileguy profile image
Itileguy in reply togreygoose

I know I was hopping I could get an increase by 15 to be at 2 grains

To see if my symptoms went away

But will wait a few weeks longer

Have to find a way to convince him lol

greygoose profile image
greygoose in reply toItileguy

Can't you just stamp your foot and say 'I want it, and I want it now!' lol Sometimes works.

Itileguy profile image
Itileguy in reply togreygoose

😆

SilverAvocado profile image
SilverAvocado in reply toItileguy

If you've only been on your current dose for 3 days I guess these blood tests are from your previous dose? I would give it time and see where you end up. There is a small chance you might get some improvement, as different brands aren't exactly the same.

Sometimes our doctors won't help us, a lot of us end up buying and dosing our own.

Itileguy profile image
Itileguy in reply toSilverAvocado

That’s what I’m hoping for

Keep my fingers crossed and everything else lol

SlowDragon profile image
SlowDragonAdministrator

Do you regularly test vitamin D, folate, ferritin and B12

What vitamin supplements do you currently take?

Have you tried strictly gluten free diet?

Itileguy profile image
Itileguy in reply toSlowDragon

Mag and d and milk thistle

Yes all test are where they need to be

SlowDragon profile image
SlowDragonAdministrator in reply toItileguy

Presumably you have Hashimoto's?

If so.......Are you on strictly gluten free diet?

Itileguy profile image
Itileguy in reply toSlowDragon

Antibodies were neg

try to avoid gluten but not entirely

Maybe my next step

My daughter has hashi

When she goes gluten free she defently feels better

SlowDragon profile image
SlowDragonAdministrator in reply toItileguy

If your daughter is Hashimoto's then it's pretty likely you are too

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

ncbi.nlm.nih.gov/pubmed/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

ncbi.nlm.nih.gov/pubmed/300...

The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

Itileguy profile image
Itileguy in reply toSlowDragon

Thyroglobulin Antibody <1.0. Reference 0.0-0.9 IU/mL

Tpo. 8 reference range 0-34 IU/m

This was my results before any meds

SlowDragon profile image
SlowDragonAdministrator in reply toItileguy

Don't understand the TG antibodies result

Is result 2 and range 0.0-0.9

If so that suggests TG antibodies are positive.....it's a very odd range

Itileguy profile image
Itileguy in reply toSlowDragon

sorry ignore the 2

SlowDragon profile image
SlowDragonAdministrator in reply toItileguy

So the result says ...more than < 1 .....i.e. High TG antibodies

Itileguy profile image
Itileguy in reply toSlowDragon

I thought when the symbol is < it meant less than

SlowDragon profile image
SlowDragonAdministrator in reply toItileguy

Sorry ....yes you are correct

en.m.wikipedia.org/wiki/Les...

Itileguy profile image
Itileguy in reply toSlowDragon

So that would me hashi?

SlowDragon profile image
SlowDragonAdministrator in reply toItileguy

Well it's really not clear is it

The result and ranges are confusing

Usually TG antibodies range is 115. If antibodies are under 115 that's negative and if over 115 that's positive

Your result seems to say less than 1. But range is extremely odd at 0-0.9

Teras profile image
Teras

I was in the same situation. You know what I discovered? Lugol's solution really works to help me feel better. 70 years ago, lugol's solution was standard treatment for all thyroid disease.

Itileguy profile image
Itileguy in reply toTeras

Interesting I tried that before starting meds but didn’t notice a difference

Teras profile image
Teras in reply toItileguy

Try it out.

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