Help I'm sure my doc is going to reduce levo - Thyroid UK

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Help I'm sure my doc is going to reduce levo

Harrisan profile image
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So these are my latest test results. I actually messed up and took my thyroxine that morning. The doctor I normally see is happy for me to be suppressed, my last tsh was 0.06 and he said as long as I was OK with the 'possible risks' he agreed with his old boss at the hospital that I probably feel better when supressed.

However, these results came back today and the surgery phoned me to come in and see another doc for a review. He's going to want to cut my Levo I know. I'm already struggling to get pregnant I really don't want to lower my Levo.

Is the fact my T4 is over range dangerous or is it OK because my free t3 is within range? Does it just show I'm not converting properly??

Help me go in prepared!! I'm thinking about ringing the surgery and asking to change it to my usual doctor.

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Harrisan
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SeasideSusie profile image
SeasideSusieRemembering

Harrisan

I'm thinking about ringing the surgery and asking to change it to my usual doctor.

That would seem to be the most sensible thing to do. And you could explain that you had taken your Levo X hours before the blood draw and you understand that the result would then reflect the dose just taken as it peaks in the blood 2-4 hours after ingesting Levo.

Is the fact my T4 is over range dangerous or is it OK because my free t3 is within range? Does it just show I'm not converting properly??

You need to do the test with normal time gap between last dose of Levo and blood draw, i.e 24 hours. Then see where your FT4 and FT3 lie. If you have a high FT4 and low FT3 it suggests poor conversion. However, for good conversion to take place we need optimal nutrient levels so you'd need to have Vit D, B12, Folate and Ferritin tested.

SlowDragon profile image
SlowDragonAdministrator

Have you had vitamin D retested since it was low, if not it needs testing

Are you supplementing any B vitamins?

Suggest you tell GP you forgot to stop biotin supplements so will need to redo test

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

GP will only prescribe to bring vitamin D up to 50nmol. Aiming to improve by self supplementing to at least 80nmol and around 100nmol may be better .

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Retesting twice yearly via vitamindtest.org.uk

Vitamin D mouth spray by Better You is good as avoids poor gut function.

It's trial and error what dose each person needs. Frequently with Hashimoto's we need higher dose than average

Local CCG guidelines

clinox.info/clinical-suppor...

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

If vitamin D is low, B vitamins may be too. As explained by Dr Gominack

healthunlocked.com/thyroidu...

B12 and folate were already on the low side. Supplementing a good quality daily vitamin B complex, one with folate in not folic acid may be beneficial.

chriskresser.com/folate-vs-...

B vitamins best taken in the morning after breakfast

I prefer Igennus Super B complex. Nice small tablets. Often only need one tablet per day, not two. Certainly would recommend only start with one tablet per day after breakfast. Retesting levels in 6-8 weeks

Or Thorne Basic B or jarrow B-right are other options that contain folate, but both are large capsules

If you are taking vitamin B complex, or any supplements containing biotin, then as said already remember to stop these 7 days before any blood tests, as biotin can falsely affect test results

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