Not sure what is going on.

[Pinkpeony]

I saw my Endo 8weeks ago and cheekily said to him that I feel no better now ( and a whole lot thinner ) than three years ago when I first saw him.

He told me to raise Levo by another 25 mcg , but neglected to inform my G.P. so I had to persuade them to to issue another 25mcg .

The girls on reception suggested I contact his Secretary . I did and asked her to fax copy to practice .

I was amazed to see that that he had written , that although I still didn't feel well , I told him that I wasn't as tired and lethargic , that I was having palpitations . Codswallop !!!

Tremors in my hands was what I said. Who did he think was seeing because it certainly wasn't me.

I had loads of bloods taken to try and find why I was losing weight , and am assuming ( ass u me ) that nothing was found as neither the G.P or myself has heard anything.

The thyroid readings were

Tsh 0.14

Ft4 14

Ft.3 4.1

This is taking 100 Levo and 20 mcg T3 .

15th September

Tsh 0.1 ( 0.35 - 5.5 )

Ft4 13 ( 9 - 23 )

Ft3 4.3. (3.5 - 6.5 )

This will be the range for above , neither of which were fasting tests as they were done unexpectedly.

A Blue Horizon test also 15th September fasting and early appointment.

Tsh 0.035 (0.270 - 4.200 )

Free T4. 16.86 ( 12 - 22 )

Free T3 5 ( 3.1 - 6.8 )

Sorry for the long post .

I feel totally rubbish and want to try NDT to see if there is any way to feel better.

Any advice welcome

Pp

[Hidden]

PP,

I didn't edit your post but just pressed the wrong button when editing mine ! ! ... Sorry.

Going on your latest results T3 is slightly over half way through range (good) but could afford to go a little higher and T4 under half way through range (bad) could go lots higher. No wonder you feel bad.

If you are medicating on 125 mcg Levo & 20 mcg T3, these are reasonable doses and your TSH is quite low so you could try an increase of 25mcg of T4 but if it were me I would try to make meds work better by addressing possible issues.

Are nutrient levels optimal ?

Ask GP to test Vit B12, Vit D , folate and ferritin as deficiencies will impair thyroid hormone absorbtion and convertion.

High/low cortisol will impact on thyroid meds and effect blood sugar levels and gut health.

Poor gut health will impact on nutrient and thyroid med absorption so address any issues such as IBS or candida.

If you have Hashimotos, be sure to keep antibody level low to avoid inflammation in the body with a g/f diet and healthy life style.

Supplement selenium (& possibly zinc) to aid convertion of T4-T3.

If you switch to NDT, ensure all nutrients and iron are optimal and thyroid antibodies low to prevent a Hashi attack when first introducing.

I hope you feel better soon.

Flower

This following link explains the importance of vitamins and where they may be obtained. This forum is supported by the charity ThyroidUK. You do not have to join the charity to benefit from this forum but by doing so you will be supporting the charity and also entitled to various discounts when buying supplements, as detailed in the link below.

thyroiduk.org.uk/tuk/treatm...

Starting NDT & other meds

stopthethyroidmadness.com/m...

……………………………………………………………………………………………………………………

Disclaimer: I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

……………………………………………………………………………………………………………………

[Pinkpeony in reply to Hidden]

Flower thank you for your reply

I don't have Hashimoto's and my vits are fine.

Cortisol was one of the things Endo was testing but have heard nothing in eight weeks so presume it is ok.

I feel worse since the addition of T3 and lost more weight ( skin and bone now.

I read on the pil weight loss is a possibility , but he didn't mention this

Pp

[Goodlife1]

My results are really similar on 125mcg levo then 125/100 alternate days. Tsh 0.15 then 0.17. Ft4 14 (won't budge up) ft3 4.5 then 4.9 and felt like hypo death. I've had 2.5mcg t3 added and feel alive again. I'm trying to figure out now why the t4 only med doesn't work for me. B12 top of range, d3 good, folate good, ferriting low last 3 months due to miscarriage but was up at 80. I supplement selenium and zinc too. I'm wondering faulty D102 gene but would that show as no t4 conversion as clearly I have some. Or Hashi's antibodies causing issues?

[Heloise in reply to Goodlife1]

stopthethyroidmadness.com/t...

Possibly?

[Pinkpeony in reply to Goodlife1]

Goodlife

Glad you are finding an improvement with t3. Long may it last!

Pp

[Goodlife1 in reply to Pinkpeony]

Yep crumbs of t3 have changed my life...that is a bad advert for t4 only! I'm now wondering whether t4 only is implicated in my miscarriage as my tsh rocketed from 1.72 to 45 the weeks before we conceived (they didn't expedite telling me) and I think even being grossly undermedicated that jump in one month is inexplicable unless the meds weren't working for me.

[Pinkpeony]

Thanks for your reply rfu .

My results for B12 ,Vit D Etc are fine.

I have lost faith in Endo as I seem to not be improving.

I know from your posts that your family is on NDT and I am going to ask the G.P tomorrow about the possibility of a trial.

I am not holding my breath.

Regards Pp

[Pinkpeony]

Sorry rfu

What is IMHO ?

Pp

[helvella in reply to Pinkpeony]

en.wiktionary.org/wiki/IMHO

[Pinkpeony in reply to helvella]

Thanks Helvella

One more to add to my list.

Pp