Need an increase in Levo

[NWA6]

Morning guys. I have my latest blood tests.

FT4 14.3 (10-20) 43% through range

FT4 6.0 (3.5 -6.5) 83.3% through range

TSH 0.03 (0.55-4.78)

So I’m seeing my GP later today to discuss the hand over of prescribing and also the fact that I need an increase in Levo. I have been super well since starting T3 in April, no sensitivity to adding Liothyronine to my Levo. I did not start it slowly, I just received my package and took 15mcg in 3 split doses from day 1. I then added another 5mcg after my first blood test because of a couple of remaining symptoms.

Now after nearly 4mths on combo treatment I have a couple of issues again. Constipation, lethargy in afternoon, numbness in left leg and left side of face and body odour. These are all very mild but they are my very specific symptoms that there is an imbalance.

I want to ask my GP to increase my Levo but I dont think she will because of this statement she wrote to my private endo in response to taking over the prescribing of T3

‘I would need reassurance that she would still be under your care for ongoing management and advice regarding changes. This is not something we are experienced in prescribing in general practise’

If she says no then I want to use this to ask her to do a vitamin and mineral check as my requests for these have been turned down.

I also want to ask her what happens if I can no longer afford to pay for private blood tests or Endo visits. And also more importantly what happens if my private endo retires or pops his clogs 😬

It’s all very well her saying that she isn’t experienced enough to deal with my condition but I think it still leaves me in a precarious position going forward.

What are your thoughts?

[RedApple Administrator]

I've just seen your other post asking for levo sources Paula. I think you might have arrived at the same point as many here. That is, when the NHS fails us, we have no choice but to do whatever it takes.

[NWA6 in reply to RedApple]

Exactly RedApple! I don’t mind going to my private Endo once a year but atm I have spent a shed load on getting to this stage. I can’t even bear to tell you how much I’ve had to spend this month alone on family life, the car and my poor dog died so we had end of life vets bills 😢😩

I need some control over my own condition! I can’t help but think my GP’s are feeling smug 😔 I wish I thought better of them as humans but I can’t.