Test result update : Hi guys My latest email... - Thyroid UK

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Test result update

Hi guys

My latest email regarding my test results (I don’t have the full online results yet it takes a while for my GP surgery to upload them) this is direct from hospital.

I actually haven’t increased to 15mg (which I’ve replied back to her) I’m still on 10mg carbimazole. I feel like rubbish. I just don’t think I need to be on this much (I know it is a low dose!)

I have a GP appointment on Friday to ask whether I was tested for Graves along the way and I just can’t see the result (despite me having a letter saying I don’t have Graves but have symptoms consistent with Graves so are treating it as such) and next endocrine is September where I will ask for Graves test specifically if Gp confirms no record of it.

The results below mean nothing to me! So any feedback gratefully received on what it means!! I am considered as having an over active thyroid with symptoms “consistent with Graves”

TSH 0.22, Free T4 13.8.

TSH level has improved. A letter will follow.

Please continue 15mg Carbimazole.

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You need to add the lab ranges to your results because labs vary and you need an FT3 result too.

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In which case, you probably have Hashi's! Has no-one thought of that? Tested your TPO antibodies?

I have never heard anything so lame! You don't have Grave's but have symptoms of Grave's and so we're treating it as Grave's. What they should be doing is finding why you have symptoms of Grave's - by which, presumably, they mean symptoms of hyperthyroidism. And, the obvious explanation is Hashi's.

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This is on my list to ask them as I know I definitely haven’t ever been tested for that

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Kelz.

I refer to your earlier post 8 days ago -

healthunlocked.com/thyroidu...

What was the result of the scan done on your "misbehaving" thyroid nodule?

Presumably this is the cause of your hyperthyroidism??

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Just that it’s an over active nodule (rest is fine) which they are trying to make behave with carbimazole

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Rest is fine meaning more than one nodule?

What are your symptoms when u say u feel like rubbish?

What is the range for that FT4?

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I feel shattered all the time and not depressed but miserable! Anxiety (but could be unrelated)

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Can you describe shattered?

Will beta blockers help with the anxiety?

Have u taken these before?

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Drained? So like foggy headed I can’t think straight some days, feels like sometimes I’m not really here. And just exhausted, but I do work long hours and travel for work so it could be unrelated to carbimazole in fairness

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Kelz.

You sound exhausted both physically and mentally. This exacerbates the hyperthyroid state, and makes you feel much worse.

I'm sorry to have to say this, but u need rest and to chill.

Depending on what the FT4 range is, you could be right in not raising the carbimazole to 15mg. Please share the range when u have it.

Do check out the beta blocker for the anxiety.

Best wishes.

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Thanks very much for the advice!!!

Yes rest and chill is something I’m told to do more of often 😬

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PS I only have those results until the full ones are posted the nurse just sent that on an email so only results I have

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What does rest is fine referring to?

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Sorry! The thyroid. It’s just one nodule over acting.

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With results like you have listed above you do not need any more carbimazole. Your T4 is already at the bottom of the range. And your T3 is within range. Odd that it’s at the top and T4 is at the bottom is that correct? Have they tried taking you off carbimazole to see what happens? They shouldn’t be assessing your need for carbimazole by TSH. It can take ages to come up after being suppressed for a long period. In some people it never comes up again!

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I’ve been on carbimazole for a suppressed TH for 3 years now :( and it’s never ever made any difference!

I have asked to reduce then come off to see what happens but they said I will become very ill and instead I need to consider the iodine treatment or removal! They are against reducing meds?! It’s extremely odd!

When I have my bloods done via GP it always comes back “normal no action” (as I’m guessing the ranges are normal) but they don’t seem to think so!

This problem was initially found whilst investigating stomach issues I was having and when it was discovered I didn’t start carbimazole for years! I was unmedicated and fine. But 3 years ago they insisted I had to start as my levels were worse (even though I felt fine! And had put on weight which I think is difficult for someone suffering with overactive thyroid?!)

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Please do get all antibodies tested for Hashimoto's and Graves

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I will definitely

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That’s ridiculous. You really need to see someone else. You could have gone into remission (if indeed you do have graves). Taking you off carbimazole to see what happens is a perfectly reasonable and normal approach. Get a second opinion.

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Thank you!

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