Galactorrhoea - Still present after being on 100mcg Levothyroxine for 6 months.

[Charlistravels]

Hi, ive had Galactorrhoea (unexplained milk production) for over a year now, since April 2018. In August 2018 i was diagnosed with Hypothyroidism and i expected this along with other symptoms

to go away. The tiredness has decreased but my weight is not shifting and i can still express a little milk. My TSH tests are within normal range. I have read one journal article that said T3 replacement successfully reduces Galactorrhoea. Has anyone else had experience of this? Is this something i should press for with my Dr? Any advice welcome.

[greygoose]

Just testing the TSH is totally insufficient. To know your thyroid status you need the TSH, FT4 and FT3 tested. Where in the normal range does your TSH fall? Once you are on thyroid hormone replacement, it should come down to 1 or under. Otherwise, you are probably under-medicated.

If you are in the UK, pressing your doctor wouldn't get you anywhere. GPs can't prescribe T3, it has to come, initially, from an endo. So, you would need a referral. But, you would also need your FT4 and FT3 tested to know if you needed it.

Under normal circumstances, T4 (levo) is converted into T3 in the body. Doctors believe that everyone can do this perfectly. The truth is that a lot of hypos can't. But, you would need your FT4 and FT3 tested at the same time to know if you are converting correctly. So, getting those tested should be your first step.

[BadHare]

There might be some information available on this website that can help you: pituitary.org.uk/informatio...

Have you had blood tests for excess prolactin &/or an MRI to ascertain whether you have a prolactinoma? If your sypmtoms started suddenly, it's a good idea to have these tests in case you do have a pituitary tumour & it's still growing.

I had hypo symptoms for over 40 years before discovering why, after a micro-adenoma was diagnosed. Blood tests for secondary hypothyroidism can be in normal range & doctors & endos (in my experience) ignore symptoms. You might have to push for the blood test & an MRI if your GP/endo are ignorant twits. I've had to self-diagnose & self medicate. It's a nuisance, & expensive, but I take the meds & supplements that make me feel better rather than being at the vagaries of medics.

In the meantime, don't try to express milk, it will just make you produce more.