High T3: Well, been on NDT/T3 therapy for over a... - Thyroid UK

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High T3

real_mission profile image
9 Replies

Well, been on NDT/T3 therapy for over a year now.

Things are getting normal.

Just been to the GP to discuss a recent blood test. T4 ... Fine T3 .... 18!

I'm going to have to reduce my T3 intake. As it's fast acting, it should be back to normal by the month end.

First bloods in about a year.

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real_mission
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9 Replies
shaws profile image
shawsAdministrator

Did you leave a gap of 12 hours between your dose of T3 and the test? Was it as early as possible and a fasting one?

If not your results could be wrong.

Don't panic because the blood tests were introduced along with levothyroxine which is T4 alone. Therefore if we add T3 to T4, take T3 only or take NDT, blood results cannot correlate. It is how 'we feel' on particular doses.

real_mission profile image
real_mission in reply toshaws

Hi Shaws,

Thanks for the reassurance!

No, I forgot to forgo the T3 prior to the test, thanks for the reminder.

I was surprised as I feel quite normal on this dose. Not losing weight, sleep like a log. No adverse effects. Heart rate is slightly up at 75 resting, but 'normal range' on BPM is anything up to 100 per minute.

Thought I'd check in and share with you all.

My tennis and golf elbow have totally disappeared along with my shoulder problems. Ever since I've been taking NDT this has all subsided.

I have to take T3 as I was gaining weight on NDT alone. I'm still overweight, but not gaining anyone and have something of a normal life again, eight years on....

JanePound profile image
JanePound in reply toreal_mission

I take Extended release T3 only and feel great. Resting heart rate is between 59 and 65 beats per minute (I do a lot of exercise), losing weight is possible but takes work, sleep well and don’t fall asleep in the afternoons like I used to on T4. My doctor just recognises that my FT3 is abnormal.

shaws profile image
shawsAdministrator in reply toJanePound

I'm glad you're feeling great on your T3 but I thought you might find the following of interest:-

One of Thyroiduk's advisers (now deceased) was an expert in the use of T3 and he himself took 150mcg in the middle of the night so nothing interfered with its uptake.

He stated that a one daily dose was best as T3 then saturated all of the T3 receptor cells (I believe we have millions), and that one dose lasted between one to three days as it sent out 'waves' throughout the day.

I am not medically qualified but had the struggle many on this forum have.

real_mission profile image
real_mission in reply toJanePound

What is this magic? One never heard of 'slow release T3'. It sounds ideal!

JanePound profile image
JanePound in reply toreal_mission

I take it twice a day, 12 hours apart. You can only get it on prescription from a compounding pharmacy. There is one in the UK but I get mine from the USA. PM me for details.

real_mission profile image
real_mission in reply toJanePound

Thanks.

shaws profile image
shawsAdministrator in reply toreal_mission

I am glad you've found an improvement and when symptoms resolve it is a relief as you sometimes think it doesn't happen.

real_mission profile image
real_mission

Well, thanks a bunch GP.

I've put on half a stone in a week and my hair is falling out at a rate of knots 🙄🙄🙄

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