HELP! UNDERACTIVE THYROID - NO ANSWERS

[sonyap83]

Diagnosed in November 2015 and prescribed 50mgr of Levo after a 16 pound weight gain in 4 weeks and a blood test a showing TSH of 108 confirmed I had an underactive thyroid. Since that my TSH has shown in the 'normal range' but I have continued to gain weight each month. In January 2019 after complaining to my doctor that I was healthy eating and exercising strictly and still not losing weight but gaining and something wasn't right he increased my Levo to 75mg, back to the doctors in April 2019 as no change in how I was feeling . My TSH was 2.2 so the doctor increased to 125mgr, back to the doctors today TSH 0.43 but still no change in weight loss problems, still gaining and feeling swollen and bloated. Doctor told me my thyroid was not the problem and that it was functioning fine. She said it might be hormonal and told me to take a 4-6 week break from my pill (microgynon).

Has anyone had the same/similar? Does anyone have any advice for me? The weight gain is really getting me down. I'm 2 sizes bigger (was a 12 now a 16) I KNOW IM NOT FAT but I'm not used to being this size, I dot feel confident or comfortable.

Please help!

[greygoose]

Oh dear, oh dear, oh dear! If your thyroid was 'functioning fine', you wouldn't need to be taking 125 mcg of thyroid hormone replacement, would you? She should not be going by the TSH only. You need your FT4 and FT3 tested. It's perfectly possible to have a TSH of 0.43 but have an FT3 in your socks. And it's low T3 that causes symptoms like weight-gain - and it's nothing to do with diet and exercise - in fact, low-calorie diets and over-exercising can make things worse. But, doctors haven't got a clue.

So, if your doctor will not do the correct tests, it would really be a good idea - and an investment in your future health - to do the tests privately. You need:

TSH

FT4

FT3

TPO antibodies

Tg antibodies

vit D

vit B12

folate

ferritin

That will give you a much clearer picture of your thyroid status.

Details of private testing here:

thyroiduk.org/tuk/testing/p...

[sonyap83]

Thank you Grey goose for your reply, I have pushed for these tests to be done in the past and after several arguments managed to get the following, but again the results came back and I was told all is normal. The results mean nothing to me but maybe you could shed some light:

These tests were done in sept 2018 and Feb 2019 so they may have changed now but I have not felt any different the symptoms are all still present.

Sept 2018

FT4 - 16.1

FT3 - 4.1

TSH 3.5

Feb 2019

TSH 2.9

Vit D - 58

Ferritin - 72

B12 - 290

Plasma Paratyhroid Hormone - 4.5

[Treepie in reply to sonyap83]

Always show the ranges when posting as Labs differ.

[SlowDragon Administrator in reply to sonyap83]

These tests are from 2018

You need full Thyroid and vitamin testing now you are on 125mcg Levothyroxine

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12

If endocrinologist doesn't test everything you will need private testing

If antibodies are high then gluten intolerance is extremely common

While still eating high gluten diet ask GP or endocrinologist for coeliac blood test first or buy test online for under £20, just to rule it out first

Assuming test is negative you can immediately go on strictly gluten free diet




(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)




Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

[sonyap83]

I totally agree, I'm going to have to pay for a private test but my concern is what do I do with the results as my doctor is ignorant and smirks when saying there is nothing wrong with me. I'm convinced she thinks I make it up

[sonyap83]

I just don't have any idea how to resolve this on my own, my doctor is typical text book. I've no idea on the cost of going private or

even where to start