Thyroid

[Barabo]

Been on thyroxine for 10 years changed meds October 2018 noticed changes swollen tongue sore throat red patches on tongue lumpy gloopy feeling when swallow very unpleasant and uncomfortable all bloods back clear at witts end help !

[SlowDragon Administrator]

In what way was medication changed?

Different brand of Levothyroxine

Or different dose?

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if Thyroid antibodies are raised

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. Last Levothyroxine dose should be 24 hours prior to test, (taking delayed dose immediately after blood draw). This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

If/when also on T3, or NDT make sure to take last dose 8-12 hours prior to test

Is this how you do your tests?

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

Add most recent results and ranges if you have them

Or come back with new post once you get results from GP or get private testing

[Barabo in reply to SlowDragon]

I usually go every 12 weeks for bloods and they let me know whether stay as Is or up dose never had a problem b 4 very worrying ! Thanks

[SlowDragon Administrator in reply to Barabo]

Dose of Levothyroxine should not need to be adjusted continually

Sounds like GP dosing only by looking at TSH

This suggests you have Hashimoto's also called autoimmune thyroid disease

Low vitamin levels are extremely common

[Barabo in reply to SlowDragon]

What do I need to do ?

[SlowDragon Administrator in reply to Barabo]

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if Thyroid antibodies are raised

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. Last Levothyroxine dose should be 24 hours prior to test, (taking delayed dose immediately after blood draw). This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Is this how you do your tests?

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

Come back with new post once you get results and ranges

[Barabo in reply to SlowDragon]

Have you for your help !

[thelady2003uk]

You haven't been on a course of steroids recently have you? I am currently on Prednisolone for Polymyalgia Rheumatica and this has caused the same problems as you. Swollen tongue, sore throat etc. Just a suggestion, if not good luck with finding out what's causing it because I agree with you it is horrible! Take Care

[Barabo in reply to thelady2003uk]

No just so worrying ... thanks

[danym]

did you change brands or dose? might be side effects?

[Barabo in reply to danym]

Yes they gave me diff brand am now back on original one that I never seemed to have issue with so here’s hoping thanks

[danym in reply to Barabo]

which brand were u taking that you got those side effects from?

[Barabo in reply to danym]

Eltroxin

[Barabo]

Might just b a shot in the dark but it’s the only thing changed around the time this all started