Hashimoto. Worried about blood results. I was d... - Thyroid UK

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Hashimoto. Worried about blood results. I was diagnosed a year ago and I am not yet medicated.

crisstine profile image
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Hello, I would appreciate if you help me to understand my results.

TSH = 3.54 (range 0.27-4.20 mlU/L)

Free T4 = 1.46 (range 0.93-1.71 ng/dL)

ANTI TPO= >600 (range 0.00-34.0 mlU/L) (Is it dangerous that the levels are so high?)

IRON= 159.50 (range 37.00- 145.00 ug/dL)

Vitamin D deficiency

Also I was wondering if this is normal for people with hashimoto: Most of the time, my thyroid is swollen. Other than that, in my neck, I have sort of a lump in one side (next to the thyroid or/and on the thyroid, I'm really not sure), that I can feel when touching. Finally, sometimes, something does not allow me to speak ( when I speak continuously for a long amount of time), and even hurts.

Doctor says that normally, the swollen thyroid does not pressure the throat. I had an ultrasound and I have no thyroid nodules. So I don't know what to think, but one side of the neck is permanently swollen. Please if you could help with some advice, or ideas.

Thanks in advance.

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SlowDragon profile image
SlowDragonAdministrator

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate and B12

Low vitamin levels are extremely common, especially if Thyroid antibodies are raised

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Is this how you do your tests?

Ask GP to test B12, folate and to retest iron and ferritin

High ferritin can be due to inflammation of Hashimoto's

But it needs monitoring

If it went much higher (at least double) you would need testing for hemochromatosis

Private Thyroid and vitamin tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

How low was vitamin D?

How much vitamin D has been prescribed?

GP will only prescribe vitamin D to reach 50nmol. Aiming to improve to at least 80nmol and around 100nmol may be better . So you will need to self supplement to reach higher levels

Vitamin D mouth spray by Better You is good as avoids poor gut function of Hashimoto's

It's trial and error what dose each person needs.

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Retesting twice yearly via vitamindtest.org.uk

Local CCG guidelines on dose required

clinox.info/clinical-suppor...

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

Your antibodies are pretty high this confirms cause is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Ideally ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

But don't be surprised that GP or endo never mention gut, gluten or low vitamins. Hashimoto's gut connection is very poorly understood

shaws profile image
shawsAdministrator

As we know, few doctors appear to know any clinical symptoms these days.

Also they seem to know no more than the TSH and if you're in the UK, doctors are told not to diagnose a patient until the TSH reaches 10. The fact that you have thyroid antibodies - depite your TSH being in range, your GP should have prescribed but is probably keeping to the guidelines given to him.

Email - tukadmin@thyroiduk.org to Dionne and ask for a copy of Dr Toft's Online article which contains an comment re 'antibodies being present.

thyroiduk.org.uk/tuk/testin...

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