Hi everyone
I never really knew what my thyroid issue was because I was a teenager when it first started and firstly I can't remember that far back but also I imagine they spoke to my Mum rather than me. Later I assumed it had been Graves because I had a partial thyroidectomy. But I found this recently on a medical letter, and it doesn't mention Graves. Can anyone tell me what it actually means?
Many thanks
I am sorry I cannot answer your question but I'll highlight it and either member may be able to answer it.
SeasideSusie greygoose
As I understand it, it means that the OP had a nodule, or nodules, on her thyroid which was producing hormone independantly of the thyroid itself, causing hyper levels of T4 and T3. The portion of the thyroid, together with the troublesome - toxic - nodule was removed, causing the OP to become hypothyroid.
Spangle15 If you had had Grave's, they would have removed the whole thyroid, I think. But as it was just a nodule on one part of the thyroid, they just removed that, and probably hoped the remaining portion would step up and produce enough hormone to make up for the missing portion. That's what they always hope, despite ample evidence to the contrary.
I don't know if that's better or worse than having Grave's, to be honest. 
Thanks Greygoose. So I don’t have autoimmunity by the sounds of things! Although my Thyroid peroxidase antibodies are slightly raised so does that mean I now have Hashi?
If you have raised TPO antibodies that does suggest Hashi's, yes - which is also an autoimmune disease. And you could have had it for a long time, too. Could be the cause of your toxic nodule. But, I don't really know about that.
Thank you. I guess I’ll never know.
Toxic nodular goitres are when the thyroid has an area of nodules where 1 or more overproduce hormone. It causes hyper without any autoimmune.
Do you remember if you took carbimazole or PTU for a while? Carbimazole can induce neutropenia in which case the medication would have been stopped & wouldn’t have been restarted.
In most cases (not all) Hormone levels tend to spike high suddenly with Graves whereas nodules tend to rise gradually so it’s feasible a year after stopping medication the levels rose to a level necessitating subtotal surgery.
As an example I have a >5cm nodule and it took 4 years for FT3 to go from borderline high to approaching double the range.
Thank you. I can’t remember what meds I was on, but I do recall being on 13 tablets per day. Carbimazole rings a bell, so it’s quite possible.
What is neutropenia?
Neutropenia refers to lower-than-normal levels of neutrophils in the blood. A neutrophil is a type of white blood cell that is produced mainly in the bone marrow. White blood cells in general, and neutrophils in particular, are important for infection control in the body.
Neutropenia can be classified as mild, moderate, or severe, depending on the number of neutrophils in a sample of blood. By many standards, the lowest acceptable limit for adults is about 1,500 neutrophils per microliter of blood. (Some put the cut-off at 1,800 per microliter.) The range of neutrophil numbers in mild neutropenia is 1,000-1,500; the number in moderate neutropenia is 500-1,000; and the count in severe neutropenia is less than 500.
Neutropenia can also be classified as acute (temporary or short-lasting) or chronic (long-lasting), congenital (a condition one is born with) or acquired (a condition that happens over a period of time).
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