Please could anybody shed any light on these results:-
TPoAB 211 (range <35
Free T4 18.7 (range 10.30 - 24.50)
Free T3 5.2 (range 3.50 - 6.50)
TSH 1.66 (range 0.30 - 5.50)
Vit D 94 (range >50)
Ferritin 37 (range 20 - 300)
Endo appt yesterday ... wants me to change from adding T3 to WP thyroid 1.5 grains no T4) However WP thyroid is not available and I only started T3 on the 28th Feb ... I felt instantly rubbish, previously my meds were Levothyroxine 107mcg per day! I am at my wits end, getting sicker by the day ... feet are killing me, dizzy, tired no energy! Thank you.
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AleB
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Hi SlowDraggon, I have been taking ferrous furmate 210mg x 2 per day since November (last ferritin check was 12), eskimo high epa fish oils x2 per day, multi vitamins x1 per day and ultra probioplex ND allfrom nutri advanced as recommended by endo. I was asked by endo to have bloods done once starting T3/T4 combo.
If you started on this T4 / T3 combo only on 28th Feb, there is little value in having had thyroid blood levels tested at this point; and certainly not a basis for your Endo deciding you need to swap to an NDT. And there's absolutely no valid reason for him specifying a particular brand of NDT unless you know you have an intolerance to some of the excipients in the other brands, for instance. I believe you were previously considering reducing your T4 dose in order to add in your new T3, and your levels may very well change over time as the reduction in T4 and addition of T3 fully shows itself in your blood. Now is not the time to be arriving at the conclusion that you need swap to NDT - what reason did he give?
Hi thank you for responding, endo said I may have an intolerance ... just recently had to do an elimination diet ... been gluten free for 8 months, but had to remove histamine foods, gradually trying to add these back! I also have D102 gene!!
Just to clarify: we all have the DIO2 gene; the issue is whether or not we have a common variant of the gene, whether we are homozygous or heterozygous for that variant, and whether it affects us and how much. So, having that variant isn't a diagnosis, but an indication that we 'may' be affected by it.
edited to add: It is the DIO (letters) 2 gene, and not the D102 (numbers) gene.
Sorry, yes you are right with the DI02 and I have the heterozygote polymorphism affecting the gene that codes for the enzyme rs225014. Sorry if I sound stupid, but I'm trying to make sense of all of this, even after 9 years being hypothyroid but the past 3 years with gradual health problems, this past year with absolutely zero good health! GP's non plussed ... I just go round in huge circles trying to make light of information, but only getting real advice from the good people like yourself on this forum.
No worries, you don't sound stupid at all, I just wanted to clear up a confusion if there was one. I understand where you're coming from - I had my T3 withdrawn in 2017 after 9 years on it and began a gradual slithering down a slippery slope to feeling very blaah until I got my private prescription for it.
Going back to your exclusion diet, might it be wiser not to start adding foods back in whilst you are balancing out your new T3/T4 combo regime, otherwise you mightn't be able to differentiate which symptoms relate to that, and which relate to the reintroduced foods? Just a thought.
Thanks MaisieGray ... yes I'm still ding the diet, maybe I won't experiment by reintroducing foods just yet ... endo said I should reintroduce after 3 weeks, then start T3 ... now told to take NDT ... It's all very chop and change, I had to ride out each drop with T4 never testing much before 10 - 12 weeks! Should I go back to just T4 and get more bloods done for B12 and folate?
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I understand where you're coming from - I had my T3 withdrawn in 2017 after 9 years on it and began a gradual slithering down a slippery slope to feeling very blaah until I got my private prescription for it.
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thyroid hormone resistance? not getting better on t4 alone or t4/t3 
