Survey re Clinical and Cost Effectiveness of Th... - Thyroid UK

Thyroid UK

144,132 members169,582 posts

Survey re Clinical and Cost Effectiveness of Thyroid Drugs

lynmynott profile image
lynmynottPartnerThyroid UK
13 Replies

Dr Adrien Heald, Consultant Physician in Diabetes and Endocrinology in Cheshire and also an Honorary Research Fellow at Manchester University, is hoping to do a study on the clinical and cost effectiveness of desiccated thyroid extract, levothyroxine plus liothyronine and levothyroxine alone, in hypothyroid patients who continue to experience symptoms whilst on levothyroxine treatment.

He has devised a questionnaire that he would like hypothyroid patients who are on levothyroxine treatment but have remaining symptoms, to complete.

If you would like to participate in this questionnaire, please go to:

thyroiduk.org/tuk/newspage....

You will need to print it off to complete it. Once it is completed, please either scan it in and return it to us at tukadmin@thyroiduk.org or send it by post to us at 32 Darcy Road, St Osyth, Clacton on Sea, Essex CO16 8QF and we will forward them all on to Dr Heald.

PS: I have now made a Word version which will go up tomorrow.

Written by
lynmynott profile image
lynmynott
Partner
To view profiles and participate in discussions please or .
Read more about...
13 Replies
shaws profile image
shaws

That's good that, at last, someone in the UK is looking into how patients are affected when not recovering on T4.

lynmynott profile image
lynmynottPartnerThyroid UK in reply toshaws

Isn't it? He seems a really good doctor.

shaws profile image
shaws

Could someone who was more unwell on levo but found changing to an option relieved their symptoms complete his form?

TSH86 profile image
TSH86 in reply toshaws

Hi, that is good news. Thank you. I will be very happy to do the questionnaire.

Sorry for being a bit slow here but would it be ok to mention on the questionaire my health score when on Levothyroxine in the past ? Which has been right at the bottom.

lynmynott profile image
lynmynottPartnerThyroid UK in reply toTSH86

Dr Heald says that if people can remember how they felt, it's fine for them to complete the survey.

shaws profile image
shaws in reply tolynmynott

Thanks - so there'll be quite a few comments I'd assume :)

p.s. there's a duplication of your response.

lynmynott profile image
lynmynottPartnerThyroid UK in reply toshaws

I wasn't sure if I had to do it for each comment so that people got a notification. :-)

lynmynott profile image
lynmynottPartnerThyroid UK in reply toshaws

I'll ask Dr Heald

lynmynott profile image
lynmynottPartnerThyroid UK in reply tolynmynott

I'll ask Dr Heald

lynmynott profile image
lynmynottPartnerThyroid UK in reply toshaws

Dr Heald says that if people can remember how they felt, it's fine for them to complete the survey.

nightingale-56 profile image
nightingale-56 in reply toshaws

Hi shaws as I am just in the process of changing medication from Levo to NDT, I am filling this form in and also doing one for my son who has also been affected by Levo. This is very opportune for me as I have just changed today, so am apprehensive as well. Thanks for posting this lynmynott .

Cat013 profile image
Cat013

It may me! But when I click on the link it just takes me to the news page. I can’t find any survey?

Oatcake profile image
Oatcake in reply toCat013

Hi Cat, this survey was done two years ago so is no longer accessible.

Not what you're looking for?

You may also like...

Thyroid UK Hypothyroid Survey

Thyroid UK is working with the Scottish Government on this survey which is part of a listening...
Clutter profile image

Dr Gordon Skinner – Sadly Missed

Thyroid UK is extremely sad to inform you of the death of Dr Gordon Skinner. Dr Skinner died of a...
lynmynott profile image
Partner

Survey by Dr Antonio Bianco and colleagues

Dr. Antonio Bianco and colleagues at the University of Chicago are looking to understand what...
lynmynott profile image
Partner

A bit of encouraging information

This paper in the UK has examined the benefits or otherwise of using DTE (NDT) on patients who did...
diogenes profile image
Remembering

Endo wants me to stop taking Levothyroxine in order to qualify for CCG approval of T3

I sought a second NHS endocrinologist's opinion today who, I was pleased to learn supports T4/T3...
sy28 profile image

Moderation team

See all
SlowDragon profile image
SlowDragonAdministrator
Buddy195 profile image
Buddy195Administrator
GlowCoach profile image
GlowCoachAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.