Survey by Dr Antonio Bianco and colleagues

[lynmynott]

Dr. Antonio Bianco and colleagues at the University of Chicago are looking to understand what “foggy brain” is. Many hypothyroid patients that are treated with different forms of thyroid hormone replacement therapy complain of “foggy brain”. Unfortunately, this specific complaint is hard to comprehend and evaluate.

They are running a survey which will help them improve understanding and treatment of hypothyroidism. By participating in the survey you will be participating in a research project based at the University of Chicago. Your participation in this research project is completely voluntary.

The survey should only take 5 to 10 minutes to complete. The survey is anonymous and no personal information will be retained or distributed. Your responses will allow thyroid researchers and clinicians to have an improved understanding of what “foggy brain” is in order to provide better ways to monitor and treat the symptoms of hypothyroidism.

To participate follow this link: docs.google.com/forms/d/e/1...

[MichelleHarris]

Completed.

I think my brain was damaged due to long delay from dramatic onset on symptoms in 2004 to diagnosis and treatment not til 2019. I dont think the medication is to blame but the lack of it x

[helvella Administrator]

Yes - I posted about it the other day:

healthunlocked.com/thyroidu...

There are quite a few comments on that thread - which might, or might not, be of interest.

[lynmynott Partner Thyroid UK in reply to helvella]

Thanks Helvella. It took me a few days to get to the bottom of what it was as I wasn't sure whether to post about it. It seems it may well be a scoping exercise so hopefully it will help in the long run.

[jimh111]

I've completed the survey. It seems to be an initial scping exerecise, which is fine. I think the question about what helps relieve brain fog is most useful as it might direct doctors to effective therapy in the long term (in my case L-T3).

It's good that someone is at least beginning to look at this issue, especially someone who specialises in deiodinase.

[PDS1]

Hi Lyn,

Thanks for this.

I can't help but think that it's connected to a cash generating treatment like those aimed at many spurious female conditions which have surfaced in recent years.

I hope I'm proved wrong, but it will require much more detailed research than this light weight survey. The questions don't even begin to tap into the symptoms of brain fog.

Maybe great oaks etc

I live in hope

PDS1

[TaraJR]

Done. Thanks lynmynott . This has been shared in several places now.

I dare to think things are starting to dawn on more people in the medical filed that poorly treated thyroid disease isn't a figment of our imagination, and that attitudes need to change.