I sought a second NHS endocrinologist's opinion today who, I was pleased to learn supports T4/T3 combination treatment, and treats patients with T3. In order for me to qualify (tick box for her CCG) for a 3 month trial of T3, I was advised she would like me to reduce and eventually stop taking my prescribed Levothyroxine altogether to see how my TSH numbers would react. She wants evidence my February 2017 TSH 5.1 will be repeated, ideally she wants my TSH to rise above 5.5 range before she confirms and accepts my existing Hashimoto's diagnosis - though admits she's 95% sure I'm hypothyroid. Neither of the two 2018 Medichecks full thyroid tests, indicating poor conversion, nor Regenerous Ltd DIO2 genetic test evidence was acceptable, in her view, for 'ticking box A' to 'open Box B'. I'm sleeping on it, but first reaction was complete dread of returning to symptoms experienced prior to original 2017 diagnosis in the name of proving I 'don't have something else'. Part of me understands her logic, but the hoops laid before us seem to be increasing. Any thoughts would be most appreciated. Dr John Midgley's 2014 Talk to Thyroid Uk and Dr Toft's 'Counterblast' article were invaluable references to outmoded reliance on TSH testing. In fairness, the consultant agreed, saying she felt sure guidelines would change, but for now she has to work with current NHS doctrines. In order to obtain T3 under her CCG, I will have to reduce current 150mcgms Levothyroxine (TSH 0.233) and stop taking altogether before re-testing TSH to see where the range lies in four months. Would you do it?
Endo wants me to stop taking Levothyroxine in o... - Thyroid UK
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