Hi I am new on here and have been told after being stable on T3 for over 5 years that my areas prescribing committee want to change my liothyronine to levothyroxine. That I need to go to a private endocrinologist and that my dr is sorry and it's due to the high health costs to the NHS. Can anyone help me with a good online pharmaceutical that I can get liothyronine from as panicking now.
Thank you
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Jamyam
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If you have done well on T3 and show a clinical need, it should not be stopped. You should be referred to an endocrinologist - NHS not private - before your T3 is removed. Your endo may say that you should stay on it.
SlowDragon has links and information about this, at the moment this is the only link I can find but hopefully she will be along with other information to help
Were you originally diagnosed by an NHS endocrinologist as having clinical need for T3?
Which CCG area are you in ?
If well, and stable on T3 you should be referred to NHS endocrinologist BEFORE any T3 prescription is withdrawn.
You need to put a letter in writing to your GP, CCG and MP saying you do not agree to having T3 withdrawn
Then if you become unwell as direct result you will hold them responsible
Before T3 is stopped you need FULL Thyroid and vitamin testing
Extremely common for vitamin levels to drop rapidly when T3 is withdrawn
You may need to see an endocrinologist privately to get a T3 prescription urgently. A private prescription for 20mcg Liothyronine x 100 tablets enables you to order cheap T3 from Germany
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if Thyroid antibodies are raised
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
If/when also on T3, make sure to take last dose 8-12 hours prior to test
Is this how you do your tests?
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random
Thank you you have been helpful will follow what you say to fight for my health. With the German online pharmaceutical can you reccomend one that it o.k to use.
There are three German pharmacies listed on this page thyroiduk.org/tuk/treatment... of the main Thyroid UK website that SlowDragon linked to in her comment above.
I am new to Thuroid Uk too and I’m in exactly the same position as you only I’ve been on Liothyronine for 15 years... I ordered a private bloods test from medicheck which I have done this morning and about to post off.. I will keep you updated of what’s happening with me, as I was also given this excellent advice you have been given by other members on here. I have been off T3 now for near 3 months and I feel probably the worst I’ve ever felt ( on a continuous basis) that I can remember.. Good Luck and Best Wishes, Claire x
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