Vibrations

[Hypoaeo19]

Anyone ever feel like they are vibrating on the inside? Especially in the head. All labs and scans show nothing neurological. On 50mcg of levo

[SlowDragon Ambassador]

How long have you been on 50mcg Levothyroxine

This is only a starter dose. Bloods should be retested 6-8 weeks after starting and dose increase slowly in 25mcg steps, retesting each time. This continues until TSH is around one and FT4 towards top of range and FT3 at least half way in range

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12

Do you have any recent blood test results and ranges to add?

Low vitamin levels are extremely common, especially if Thyroid antibodies are raised. Vitamins often require regular testing and supplementing to maintain adequate levels

All thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

[Hypoaeo19 in reply to SlowDragon]

I started on 50 in April 2015. Had a baby in 2016. Upped to 88. Stopped birth control in nov 2017. Vibrations and hyper symptoms started then. It’s been an awful year. Found out I was never reduced back to pre-pregnancy in Oct 2018. Been back on since Nov but I just really think long term damage has been done. It’s depressing. I’m wondering if I should try synthroid.

[SlowDragon Ambassador in reply to Hypoaeo19]

More likely under medicated and/or low vitamins (directly due to under medication)

Low vitamins equals poor conversion of FT4 to FT3. Low FT3 is extremely common. Essential to test

Most patients eventually need somewhere between 100mcg and 200mcg Levothyroxine

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if Thyroid antibodies are raised

All thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

[Saya85 in reply to Hypoaeo19]

Coming off the pill is significant

Often the pills will mask a folate/b12 defiicnecy

The vibrations or pulsatile tinnitus is one of the worst symotoms I had. Once b12 and folic acid corrected they've virtually gone.

Also need to optimise other vitamins and thyroid dose but the specific symptom may be to do with the b12.

Have a look at the symptoms of its defiicnecy - many of us hypos have b12 defiicnecy too

[Thor70]

Yes, I have had this problem. It happened when I'd lay down to sleep. It either kept me awake, or woke me up ALL night long. For me, I needed several trips to the chiropractor for a neck and back adjustment and it alleviated the problem. It was just what worked for me.

[Hypoaeo19 in reply to Thor70]

How long did it last??