im still figuring out how to use this site but I can’t say enough how unfortunately happy I was to find other ppl who are dealing with this also! Mine started about six months ago when I started weaning down on my gabapentin. Then my thyroid started acting up, and it seemed like the levothyroxine was making the vibrations worse, so to make a long story short I finally quit taking the levothyroxine about a month and a half ago, and the vibrations are still going on so in hindsight, I don’t think it had anything to do with the levothyroxine!? I don’t know at this point. I am baffled. I’ve tried all kinds of different supplements. I’ve done so much research. My brain hurts! And I started having a meltdown when I was reading all of your stories, which made me extremely sad that so many people are dealing with this and nobody has helped us . Basically given up on doctors for help at all. I waited three months to see an endocrinologist and she didn’t give two shits about me and my situation. In the appointment, I asked her if she would prescribe a more natural thyroid medication and she got really snippy with me and told me no. So I went and got my blood work done and my thyroid is low and I’m expected to wait another three months to even get to see her. I’m just so over this at this point. I did call my my old doctor and asked if she would prescribe the thyroid bioidentical because she prescribes the hormone bioidentical for me and she said she does prescribe the more natural thyroid medication and would be open to prescribing the thyroid bioidentical so for now I’m going to make an appointment and go see her! But I did see a post last night and the lady said something about calcium and she took Tums and the vibrations went away! So I tried eating three or four tums last night and guess what the vibrations went away an hour later and have not come back! I have been in a spot where they went away for 24 to 48 hours and came back so I’m just waiting to see if this really worked! If it did, it tells me that it has something to do with calcium obviously! Thank you for all of your stories and giving me hope to keep pushing forward to find answers! I will keep updating on my progress thank you. I wish you all the best and am Praying for all of you!✝️💜
Babs♥️
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Babs4of5
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If Tums help reduce your vibrations then could you list the ingredients in the product you were/are taking?
If one of the ingredients was calcium carbonate or some other calcium compound then you should ask your doctor to test your calcium levels.
I don't know what other ingredients Tums might have. I don't know if they are the same everywhere, for example, the ingredients in USA Tums and UK Tums might be different.
It would be helpful if you could give the country you live in in your profile.
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Another possible cause of the vibration feeling could be cortisol levels being too high or too low. You would need testing for this. Cortisol testing can be done via blood, urine, or saliva. Doctors in the UK usually test blood. I don't know anyone who has tested cortisol in urine. People can test cortisol via saliva, and it is more comprehensive than blood or urine testing. But not all private companies that do saliva cortisol testing are the same - some are better than others.
Hi, well this is my second night trying the tums and the tremors are back! So I guess I just had one of those rare night without the vibrating! I live in the US,!
On the assumption your problem is connected with your adrenal glands, there is a cheap thing you can try at home - an adrenal cocktail - (no doctor required) to see if it helps you
When the body has too low a level of thyroid hormones the body will often substitute with the stress hormones i.e. cortisol and adrenaline. This is why some people with hypothyroidism struggle with panic, anxiety, and depression when they have low thyroid hormones. And substituting for low thyroid with anti-depressants or tranquilisers doesn't work despite the fact that thousands or millions of doctors have been trying it for decades, or even centuries. (When I say centuries I'm thinking of the Victorian use of Laudanum.)
Things can get even worse for the patient if their adrenal glands can't take the stress of over-producing cortisol for years.
Hello and welcome! Please keep us posted on your thyroid and progress!
The more time you spend on this forum, the most immediate benefit will be the confusion around why you feel the way you do will clear up.
Through a combination of blood tests, hormone dosing, and symptom checks - you will benefit from a huge and experienced patient community who has been there/done that with all things impacted by the thyroid.
As you wait and see if the Tums impact lasts, you may consider getting the following blood tests for a complete picture of your thyroid health. If you are in the UK, you may choose to do Medichecks rather than wait for your next appt (where it's unlikely but not impossible you can get these tested on the NHS'):
TSH
Free T4
Free T3
Ferritin
D3
B12
Folate
It's recommended these are tested consistently, fasting, as close to 9 am as possible, and if you are taking Levo - last dose 24 hours before. No biotin for 3-5 days before.
Without knowing more about you, especially your blood test results, it's hard to say exactly what is at the root cause of your symptom.
And when it comes to symptoms, it's important to address the underlying cause rather than a temporary fix where you're not sure why it's working.
For example, if you are guessing you are experiencing symptoms of low calcium, you would want to confirm that as it can be caused by many things (none of which I'm implying you have - just saying you really don't know) - like vitamin D deficiency, parathyroid issues, or kidney problems. I'm not even sure if the above should be treated with calcium supplements, and if so, who knows if the amount in Tums would even be sufficient to even correct the deficiency.
Thanks for the feedback! The vibrations are back and the tums didn’t help the second day! So frustrating! I’ll be seeing a new doctor as soon as I can make an appointment! It’s Sunday!
Hello Babs - what do you mean by vibrations? do you mean you feel a kind of internal buzzing? I had something like this a few years ago and it felt like I had a phone buzzing inside my abdomen. Is what you're feeling anything like this? I saw an article on the Newson Health site a few days ago which says the cause is unknown but they think it might be related to perimenopause or menopause. Mine started when I was perimenopausal and lasted a few weeks. It comes back occasionally but since I've got on good body identical HRT I hardly ever have it. I don't know how old you are but maybe it could be to do with this? I remember it being very upsetting at the time but this was a few years ago and I hardly ever get it now. The article talks about optimising iron, vitamin D etc which are important for good thyroid function.
Hi Babs, I have the same vibrations sometimes. I found it impossible to even get my GP to understand what I was describing. He wrote that I "feel rather shaky" in my notes, which isn't right at all. Over the years I have found supplementing with magnesium citrate reduces or eliminates the episodes. If I stop taking the tablets, the vibrations return after a week or two. Have you tried taking magnesium? It doesn't work instantly, I think the blood level needs to build up a bit. Good luck.x
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