I am on thyroxine,75/100 mcg alternate days. Am also on Prednisolone for Poly Myalgia rheumatica. I have just been on to the HU website for PMR/GCA.
Someone there was posting about the interaction of levo and pred. Is there anyone on here on both and or have info. or can point me in the right direction please. I feel I need to know more.
If you can get off the Pred. i would. I looked up your other condition and am wondering if your symptoms with your muscles , are not only because of your low thyroid and treatment of that, as well as if you have Hashimoto's Disease causing your Hypothyroid ism? . Muscle pain and stiffness, high SED rate, high, C Reactive protein is all common with Hashi's and the other disorder. T3 got rid of my muscle pain and stiffness and Fibromyalgia symptoms.
Hi faith63 thank you for your reply, I am trying to get off the pred. asap, but got stuck at 5 mg. down from 15.
I don't know if my hypo T is Hashi or not. Have had an Anti-thyroid peroxidase antibody test which came out at 8.0 (kU/L 0.0-34.0). ESR 28 (0-30) mm/ph. CRP 29 (0-10 mg/L)
The PMR post. which I can't find, was to me, implying that Thryo interferes with Pred at the cellular level and not causing probs at the stomach level. I do keep them apart anyway
I feel I am beginning to get improvement with the thyroxine but still in the upping it stage. If I don't continue to improve I will push for T3 but have to be careful don't want to alienate my kind doc. who was prepared to help me when others wouldn't.
Regards
I get my t3 meds from Mexico, i didn't do well on Levo at all..all the doctors have alienated me!!! They really don't listen and have left me ill. Your doctor is most likely not very well trained in hypothyroidism or it's symptoms or maybe would not have put you on Pred.
There is a TPO and a TGAB, i think, 2 tests for Hashimotos antibodies. You can be positive on 1 and not the other or negative and still have Hashi's. It is good to find out.
Hi faith63 thanks for the info on T3 and the other anti body tests. I will take the antibody tests up with doc.
I have to be careful not to alienate her. I have had to doctor shopping for over three years to get some help. I have only been at this practice since Aug.
I agree with you over her not being up in thyroid knowledge but at least she is giving me a trial and I am so grateful for that.
I was given the pred over a year ago by a rheumatology consultant for the PMR.
I am hoping the levo will help me so I can get off pred.
Kind regards siskin
I hope it all works out for you. The only way for many people to get well, is to self medicate. 5 mgs pred is enough to stop your own cortisol production, which is really scary. I think you can google a weaning schedule. Many don't get well on t4 meds alone and need t3. I have been trying to get well for 5 years.
I have taken both for years with absolutely no problem. Take thyroxine with water only, then an hour later, the Pred with food. It must be with food as it can be hard on the stomach.
Good luck! And don't worry!
Joeyis7
Doesn't Wetabix have gluten in it? Seems a bit pointless eating gluten free bread which is horrendously expensive.
I am on both Levo 50mgs and reducing Prednisolone dose, currently 3 or 4 mgs a day with a view to coming off in the next few months. I had no probs until I started taking Levo when I immediately became stiff ( shoulders/hips). It got progressively worse when I got up to 100mgs Levo. I then refused to take anymore. The stiffness reduced immediately but I was left with a residual slight stiffness. After a couple of months I started taking Levo again, 25 then 50 and I refuse to increase because of the stiffness. Long story short, I was diagnosed as PMR and my Dr refuses to believe it is caused by Levo. Its just a coincidence and there is nothing published linking the Levo to PMR. I still think there is. Dreading coming off steroids in case it flares up again. Anybody had similar experiences or has any advice to offer?
Thank you louise-a
This is a previous post.
Hi Linda 43 I can't answer or comment on your post as it seems to be the oppsite to what is going on for me.
The HU PMR/GCA site is very informative and may help you.
May I suggest you repost this query again on this site as you may not get the answers which could help you as my original question is very different to yours and might not b e picked up by those who may be able to help.
Regards.
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