Any advice?

[Pinebunny]

I saw the Endocrinologist in August. At the time I was told my TSH was 0.02, FreeT4 16.6 and Free T3 5.7 and vitamin D 42 (no ranges given). I was told to reduce my Levothyroxine and increase my Vit D medication. Based on how I felt, I was expecting the dose to go up. Anyway, I have done as I am told and now have creaky knees, tired all the time, skin itching. I've spent most of this year feeling rubbish.

I so want to go back to NDT. I couldn't get the Thyroid-S any more, hence trying again on synthetic. I did get an alternative sent from Thailand but not sure whether to persevere with the Endo advice or try the alternative. I'm so fed up.

[SlowDragon Administrator]

How much vitamin D have you been taking?

What about folate, B12 and ferritin levels

How much was Levothyroxine reduced? Your FT4 or FT3 didn't look high

Do you have Hashimoto's?

Time to get retested perhaps.

For full Thyroid evaluation you need TSH, FT4, FT3 plus TPO and TG thyroid antibodies and also very important to test vitamin D, folate, ferritin and B12

All thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

[greygoose]

Your endo was only looking at the TSH, and ignoring the thyroid hormone levels. Personally, I would not have followed his advice because I don't think he knows what he's talking about. If NDT makes you well, go for it! Because that endo never will.

[Pinebunny]

The first endo I saw seemed really knowledgeable and felt confident he could get me optimal and wasn't against getting me T3 or even NDT as a last resort but I got a different member of the team last time. I attempted to even get a private appointment with him but he's on leave until after Christmas.

[silverfox7]

I'm interested what NDT you were sent. I've heard of some given TR MAN and been good on it and the ingredients I'm hearing are identical. But as you have an offer of a source then go for that, just wanted to say that the previous seller of your order may well have been trying to be helpful.

[Pinebunny in reply to silverfox7]

It is TR and as she couldn't get thyroid s, she did what she could but it took s couple of months to arrive, leaving me with nothing which is why I went back to GP.

Does anyone know how best to switch?

[silverfox7 in reply to Pinebunny]

Can understand the time lack being a problem! I started my thyroid journey over 30 years ago taking NDT via the NHS but there was a strike in Canada where it was imported from so I was without for 3 months so then went onto Levo. 3-4 years ago I went back to NDT.