Please someone give me some light?! I need a pr... - Thyroid UK

Thyroid UK

115,649 members β€’ 134,123 posts

Please someone give me some light?! I need a prescription for ndt or Armour thyroid in the uk, this is my 1st post, I am new πŸ˜“

Ladybee80s
Ladybee80s
β€’12 Replies

Am at my wits end, just been told after nearly 2 years battling with my gp that he won't prescribe ndt privately... I've had my case taken to the doctor council which got rejected!

I just need a dr who is willing to give me a prescription for ndt, I started off having an overactive thyroid after birthing my daughter 6 years ago, which was eventually treated with rai, that I had two consecutive years now I am totally under active and struggling... I have done my research, it's all I think about! I have a mainly clean diet other than the odd bag of crisps here and there, I drink distilled water which gives me clarity so don't have brain fog but actually is more frustrating because I know what's going on as I'm thinking clear but can't get anywhere with obtaining the suppliments I so desperately need!

Please help!!!! Xxx

12 Replies
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SeasideSusie
SeasideSusieAdministrator

Ladybee

In the UK you'll find it difficult for a doctor to prescribe NDT. It's an unlicensed medication here and very few doctors are willing to take personal responsibility for prescribing it.

It's possible you may get a private doctor to prescribe, but no guarantees. You can send for the list of thyroid friendly doctors from ThyroidUK by emailing Dionne at

tukadmin@thyroiduk.org

As you are underactive, have you been prescribed Levothyroxine?

What are your latest test results? Can you post them, with their reference ranges, and members may be able to help you. Ideally we need to see

TSH

FT4

FT3

Thyroid antibodies

Vit D

B12

Folate

Ferritin

Im having a full blood count on Friday and will update, I've been taking raw thyroid supplements for the past near on two years but these are derived from bovine, and am after the porcine based supplements.

I can't take Levi as it has such bad side effects i wouldn't be able to get out of bed, I have two young children that need me to be at my best and am feeling I'm totally letting them down.

SeasideSusie
SeasideSusieAdministrator in reply to Ladybee80s

Metavive is porcine (although they do have a bovine one as well) and available to buy in the UK. It's not sold as NDT, it's sold as a supplement - thyroid glandular - with undisclosed amounts of T4 and T3.

A full blood count doesn't test vitamins and minerals.

I get mine from Thailand. I can give you their website if you're interested.

Ladybee80s
Ladybee80s in reply to samybrook

Please pm website so I Can take a look

A small number of GP's (who are familiar with NDT) are willing to write a private prescription for it.

I've just been rejected from pushdoctor too, one doctor wrote prescription but it got turned down when processing πŸ˜“πŸ˜“πŸ˜“

I get mine from Thailand too. tpauk is a great forum if you decide to go ndt route

If you are drinking solely or mainly distilled water then that may be causing a not inconsiderable problem for you. As Dr Mercola writes:

[Drinking distilled water can cause a] "Rapid loss of electrolytes (sodium, potassium, chloride) and trace minerals like magnesium, deficiencies of which can cause heart beat irregularities and high blood pressure. Cooking foods in distilled water pulls the minerals out of them and lowers their nutrient value.

Distilled water is an active absorber and when it comes into contact with air, it absorbs carbon dioxide, making it acidic. The more distilled water a person drinks, the higher the body acidity becomes.

According to the U.S. Environmental Protection Agency, 'Distilled water, being essentially mineral-free, is very aggressive, in that it tends to dissolve substances with which it is in contact. Notably, carbon dioxide from the air is rapidly absorbed, making the water acidic and even more aggressive. Many metals are dissolved by distilled water.'

The most toxic commercial beverages that people consume (i.e. cola beverages and other soft drinks) are made from distilled water. Studies have consistently shown that heavy consumers of soft drinks (with or without sugar) spill huge amounts of calcium, magnesium and other trace minerals into the urine.

The more mineral loss, the greater the risk for osteoporosis, osteoarthritis, hypothyroidism, coronary artery disease, high blood pressure and a long list of degenerative diseases generally associated with premature ageing."

Thanks for the reply and advice, I have told my doctor that I'm drinking distilled water and he didn't seem to have a problem with it... The charcoal filter takes out carbon dioxide and then I bottle it in glass bottles, so it's not left out to leach anything from the air!

I also drink coconut water for electrolytes and take vitamin d and calcium supplement... I bath in magnesium flakes as this is the best way to absorb it into your body and have made up a spray magnesium for after showers!

I do try to keep to a gluten free diet also so trying my hardest at this... Have done my fair share of research!

Thanks again for your replies

SlowDragon
SlowDragonAdministrator

As you started off with Graves and now hypo, very likely you have low vitamin D, folate, ferritin and B12

Have these been tested?

Graves and Hashimoto's patients very often benefit from strictly gluten free diet

Ideally ask GP for coeliac blood test first

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

scdlifestyle.com/2014/08/th...

For full Thyroid evaluation you need TSH, FT4, FT3 plus TPO and TG thyroid antibodies and also very important to test vitamin D, folate, ferritin and B12

All thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

If also on T3, or NDT or thyroid supplements make sure to take last dose 12 hours prior to test

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

Thanks so much for the info as got a call back from the doctor tomorrow eve and having a blood test 9:30am Friday morning so will make sure he does tests for all listed above if possible!

I'll make a note and ask him if this is doable?!

Thanks again

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