Just started taking 25mg Levothyroxine for CFS

I would be interested to hear from those of you who have a similar situation to mine. I am 58, slim and fit and generally in good health. I developed CFS/ME around 5 years ago, following a virus. I had very little positive help from my GP and am very aware of the limitations with NHS primary health in terms of these auto immune conditions. I was interested in exploring underlying 'cause', rather that just accepting the semi disabled situation that I was faced with. I researched throughly and found a highly respected private immunologist /specialist who is one of the best in the country.

So, that's a bit of background. We discussed various treatments to trial. I'm very realistic and understand that what will work for one person, may not for another. To keep my costs down, he wrote to my GP to ask her to organise various blood tests for me. One of them was to test my T4 and T3 levels. She refused to do that, as my TSH levels were within range (I know... it's so frustrating isn't it?). Even though my family history is that both my mother and grandmother had hypothyroidism, and my symptoms were typical, because my TSH was 1.9, she refused to help me, referring me back to the private consultation. I did tell her that the only reason I was seeing someone privately was because I had reached a brick wall with my GP, and I wanted to at least explore things further. I was unable to afford private blood tests and the consultant was terrific, telling me that I should have more support from GP.

So, what he suggested, was that I trial a very low dose of levothyroxine, (25mg), to see how I feel, as this has been shown to benefit people who have auto immune conditions. I trust him implicitly as he has devoted his whole career into research and treating autoimmune conditions. He also trialled me on B12 injections and I found these hugely beneficial for energy.

My reason for posting this is to enquire whether any of you are in a similar situation, ie. you have normal TSH but have been unable to get your T3 and T4 checked out. He did say that it wasn't necessary (if my GP refused to do this) as the levothyroxine dose he prescribed in so low. He said that if I find after six or so weeks, that there is no difference, it can be stopped.

I am very up to date with online research so would be grateful if no links could be posted. I am more interested in others experience, as using levothyroxine in CFS. There are many doctors (one of them being Dr Myhill) who feel this is of huge benefit even when levels are within range.

Value your feedback. Many thanks.