Does anyone else

[apayett24]

I have an over active thyroid is anyone else out there have the same I don’t take medicine for it is anyone out there doing the same can food cure it

[shaws Administrator]

I am hypo thyroid so those members who are hyper will respond when they read your post.

They will explain what their doctor or endocrinologists advised or how they were able to reduce their levels

In the meantime the following are from the main site, Thyroiduk.org.uk:

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

[humanbean]

If you've been diagnosed with an over-active thyroid why isn't your doctor treating you for it?

[apayett24 in reply to humanbean]

I can’t get out to see the doctor

[humanbean in reply to apayett24]

Have you diagnosed hyperthyroidism yourself on the basis of your symptoms or have you had blood tests from the doctor confirming it?

What are your symptoms?

Are you bed bound? If you are then you should be able to book a telephone consultation with your doctor.

Hyperthyroidism isn't something which should be left untreated.

[apayett24 in reply to humanbean]

When I was able to get out to go to a doctor to get my panic disorder diagnosed they tell me I had hyperthyroidism they didn’t tell me how bad or anything

[bantam12 in reply to apayett24]

You need to be taking medication to stabilise your levels otherwise you will become extremely ill, no you can't cure it with food. Ask your GP for a home visit if you are housebound.

[SlowDragon Administrator]

Can you add your most recent blood test results and ranges for TSH, FT3 and FT4, plus have you also had thyroid antibodies tested

Plus TSI or TRab antibodies tested for Graves' disease (hyperthyroid)

Also helpful if had vitamin D, folate, ferritin and B12 tested. Add results and ranges if you have them

Gluten free diet might help

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

[Valarian]

Quite a few of us here have, or have had, overactive thyroids.

You should at least see an endocrinologist before deciding to manage without treatment. The symptoms can be awful, and untreated hyperthyroidism can lead to hospital, even ICU. It can be treated, but it definitely isn’t a condition to be messed with.

What tests have you had done ? Ideally you need TSH, FT3 and FT4, to start with, and depending on the outcome of these, probably some antibody tests as well. It’s not enough just to know that you are hyperthyroid, you need to know why. If you can’t get out to see the doctor, did you have your tests done privately ? Just wondering, because I don’t think the antibody tests are available as a fingerprick option.

If you post your results and the associated reference ranges, we may be able to give you more info.

Are you in the U.K., by the way?

[apayett24 in reply to Valarian]

I’m in the U.S

[Valarian in reply to apayett24]

Ok, so have you had blood tests? Although there are symptoms that are typical of thyroid disease, almost none of them are specific to that alone.

I’ve seen your earlier posts too, and some of your symptoms (including anxiety by the way) could be down to, or exacerbated by an overactive thyroid, but by themselves they aren’t conclusive. If you are hyperthyroid, you need to be treated (isn’t that thumping heart rate telling you that ?!). If you aren’t hyperthyroid, you need to find out what it is that is making you feel so ill.

Is there no way you can get home visits from a doctor ? Or if a friend went with you, could you get to an appointment by taxi ?

[MaisieGray]

I see from your profile that you have a long history of severe anxiety, such that it induces a range of health symptoms & fears, and what sounds like agoraphobia. If you believe you have hyperthyroidism, or have been formally diagnosed as such, you really need to receive proper treatment. Food cannot help a thyroid that is functioning in overdrive.

[apayett24 in reply to MaisieGray]

Yes a doctor diagnosed meet with overactive thyroid 2 years ago and I haven’t had any treatment at all

[Valarian in reply to apayett24]

Were you offered treatment ? Or was there supposed to be follow-up that never happened ?

[apayett24 in reply to Valarian]

A follow up but couldn’t get to it

[Valarian in reply to apayett24]

Well you can see, we’re all saying you need to find a way of getting proper medical advice, and new tests, as the ones you had done two years ago will be irrelevant by now.

If you have a condition that prevents you from getting to the doctor, surly there must be some provision in place to deal with this ?

[apayett24 in reply to Valarian]

Last time I left my heart rate was 193

[apayett24]

So here in the US it’s really hard to get “extra testing” when you’re on medicad. I was diagnosed on the basis of a CBC blood test. With no specialized thyroid testing at all. With the medical coverage I have (government provided) it’s just basic medical testing and if they don’t deem it medically necessary then it won’t get done. All I know is they said my TSH level was very high.

[MaisieGray in reply to apayett24]

Many, if not most, of us here won't know the particular ramifications of your your medical cover, but as you were last tested more than two years ago, at which point you had an abnormal TSH result (for which you should have received at least a follow up test, if not treatment), are you not eligible to have a further retest now? However, in general it is with HYPOthyroidism that you would expect to have a high TSH, not HYPERthyroidism. It is generally a LOW level of TSH and high levels of T3 and/or T4 that usually means you have an overactive thyroid. TSH is not a thyroid hormone, but a pituitary hormone and as its name indicates, it's function is to stimulate the thyroid to produce more thyroid hormones - so if the pituitary gland is producing more TSH it is because there is an insufficiency of thyroid hormones, indicating hypothyroidism. Do you have a copy of your blood test results that you could check results and post here?

[apayett24 in reply to MaisieGray]

They are sending it to me in the mail

[MaisieGray in reply to apayett24]

It's a pity they couldn't have emailed them to you. However, once you have them, post them in a new post, and ask for feedback.

[apayett24 in reply to MaisieGray]

Ok

[Valarian in reply to apayett24]

There are other Americans on this forum, but they may not be following this thread - it might be worth posting specifically asking for their advice on dealing with the system.

It's actually pretty hard to get extra testing on the NHS, which is why so many people pay for additional private tests. I don't know whether this would be an option for you. However, whether you are hypOthyroid or hypERthyroid, there are basic essential tests which should be covered, as leaving thyroid problems untreated is dangerous.

[humanbean]

It is possible that your panic disorder is caused by or made worse by hyperthyroidism. If you can get treated for the hyperthyroidism you may be able to get the panic under control.

[apayett24 in reply to humanbean]

It’s hard to do if anyone has tryed herbs to cure that would help a lot

[humanbean in reply to apayett24]

Sadly, hyperthyroidism can't be treated with herbs. You would need to take prescribed medication to deal with the problem successfully.

There is also the problem that it isn't clear what diagnosis you actually have. You say you've been diagnosed with hyperthyroidism, yet you also say you had a very high TSH. TSH is very low in hyperthyroidism. It is high in hypothyroidism. So the information you are giving us is contradictory.

If you read this link :

stopthethyroidmadness.com/r...

there are links to places that people in the US and some other countries can order their own blood tests without involving a doctor and for which no insurance is required. Perhaps you can get your own tests done without leaving home - although you would have to have someone post the blood for you.

[apayett24 in reply to humanbean]

I won’t know till my lad results get here

[eve196]

Four years ago I started having panic attacks,heart palpitations,insomnia,rapid weight loss,vision problems,brain fog,feeling tired ,severe anxiety and more totally out of the blue. I couldn't understand what was happening to me. It was like my mind was switching spin speed,so was my heart rate.Blood work showed a weird TSH,sometimes undetectable and others above 10. I was prescribed levothyroxine which made me way worse. I tried it 3 times in different forms and brands,all four i ended up acting like manic.I was told to stop it immediately. Four years later,and after a load of erroneous diagnoses such as Lupus,Lyme's and MS, I still suffer symptoms. Not as severe but bouts of them.I was about to stop looking for an answer when three months ago my eye doctor suggested I should have an MRI which revealed an hormone secreting pituitary tumor.If you relate to all these,maybe you should have yours checked as well. I am not an expert on the subject,I am just mentioning my case where my thyroid ups and downs were and still are the result of a tumor. I hope you figure it out and feel better soon!