PLEASE HELP: Very new to having thyroids be... - Thyroid UK

Thyroid UK

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PLEASE HELP

thyro1ds profile image
6 Replies

Very new to having thyroids be patient please I had Graves Disease took the iodine radiation pill which made me hypo instead of hyper they gave me to much meds bc I was so hypo just lowered my dosage I’m having trouble walking it hurts an my hands feel funny I’m pretty much losing my mind super depressed please help

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thyro1ds
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Nanaedake profile image
Nanaedake

Please get a copy of your latest thyroid blood test results along with the lab ranges and make an appointment to discuss your symptoms with your GP. Make a list of your symptoms before you attend the apt. You can post your test results here for some suggestions.

thyro1ds profile image
thyro1ds in reply to Nanaedake

Ok thank you

SlowDragon profile image
SlowDragonAdministrator

The aim of Levothyroxine is to be on high enough dose for TSH to be under one and FT4 right at top of range and most importantly FT3 at least half way in range.

Low vitamin levels are extremely common, ask GP to test vitamin D, folate, B12 and ferritin

Add results and ranges if you have them

All thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Is this how you do your tests?

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

thyro1ds profile image
thyro1ds

I go to an endocrinologist an someone at the office checks my blood I’m on levothyroxin 137 bc the 150 was to much I dnt understand all the terminology yet all I kno is something was .43 I have to get my results an post them I’ve been super depressed an having major anxiety an google isn’t helping I’m having problems with walking my feet hurt an hands become numb an i googled symptoms an a lot of ALS popped up which freaked me out I dnt go to my endo until Dec I’m sorry I’m talking to much I’m just scared an not myself I was extremely healthy an now this

SlowDragon profile image
SlowDragonAdministrator in reply to thyro1ds

Sore feet is extremely common hypothyroid problem. (Plantar fasciitis) Usually it's either low vitamin D and/or low FT3

Low vitamins can mean it's difficult to use your thyroid hormones, then dose of Levothyroxine incorrectly gets reduced.

You are legally entitled to printed copies of your blood test results and ranges.

UK GP practices are supposed to offer online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up. They can no longer charge for printing out, rules changed after May 25th 2018

Come back with new post once you have results and ranges

You could start helping yourself by taking a daily vitamin C

Other vitamins should be tested FIRST before starting any supplements.

Ask GP to test vitamin D, folate, B12 and ferritin

Anxiety and depression are common hypothyroid symptoms too

thyro1ds profile image
thyro1ds

Thank u so much

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