Not happy with testc: Despite loads of great... - Thyroid UK

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Not happy with testc

Riley1969 profile image
5 Replies

Despite loads of great advice from folk here 2nd blood test was the dead cheap one and THS very low same as last week 0.005 range 0.6 To 3.6 and T4 up a point to 21 range 8 to 14 all vitamins fine .Told to stay on 10mg of Propranolol low as I have asthma but now on the child dose of carbi namely 5 mg having another test in 3 weeks and referred to specialist hope that does not take the 8 weeks suggested

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Riley1969
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Nanaedake profile image
Nanaedake

You need to have TSH, FT4 and FT3 tested at the same time to find out what is going on. What thyroid condition have you been diagnosed with and on what basis? Have you had thyroid antibodies TPO and TgAb tested for Hashimotos thyroiditis and have you had TSI and TRAB tested to rule out Graves disease (overactive thyroid)?

Riley1969 profile image
Riley1969 in reply to Nanaedake

Despite asking for T3 to be tested they didn't and GP with my symptoms fatigue headaches fever bouts loosing weight loose bowels said I think it's over active thyroid didn't use the term Graves

Nanaedake profile image
Nanaedake in reply to Riley1969

There can be a number of reasons for overactive thyroid and you really need to know what thyroid condition you have in order to treat it correctly. Hashimotos thyroiditis can cause periods of overactivity as can Graves disease so make sure the Endo is a thyroid specialist, not a diabetic specialist and actually conducts the relevant tests for full thyroid evaluation. See SeasideSusie or SlowDragon 's posts for best advice on full evaluation.

SlowDragon profile image
SlowDragonAdministrator

You could organise your own thyroid tests

For full Thyroid evaluation you need TSH, FT4, FT3 plus TPO and TG thyroid antibodies for Hashimoto's and also very important to test vitamin D, folate, ferritin and B12

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

Plus Private testing for suspected Graves - TSI or TRab antibodies

medichecks.com/thyroid-func...

All thyroid tests should ideally be done as early as possible in morning and fasting. This gives highest TSH and most consistent results. (Patient to patient tip, GP will be unaware)

If TPO or TG antibodies are high this is usually Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease). But it can sometimes be a Graves

So TSI or TRab antibodies are the ones yo test for confirming Graves

About 90% of all hypothyroidism in Uk is due to Hashimoto's.

Low vitamins are especially common with Hashimoto's or Graves

Food intolerances are very common too, especially gluten.

So it's important to get TPO and TG thyroid antibodies, plus TSI or TRab antibodies if Graves is suspected tested at least once .

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies and Hashimoto's

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

List of hypothyroid symptoms

thyroiduk.org.uk/tuk/about_...

Riley1969 profile image
Riley1969 in reply to SlowDragon

Thanks my folate B12 and ferritin where above normal D not tested but been taking multivitamins and D for some time .Will go private if don't see specialist within a month AM sure they will do full test ?

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